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Category Tag: fundraising

Jaime Seltzer: Science Makes the Impact

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People with ME are an incredibly science-literate patient population, even if that isn’t by choice: it’s the gaps in research and clinical care that have made us experts by necessity. Many of us eagerly participate in studies and engage in science discussions online. We regularly present our clinicians with new ...

Erin Roediger: Igniting a Fire for ME

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As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose: to be part of igniting the fire for change in the world. While it took me a while to determine that purpose, this truth has always been a driving force in ...

Meet the #MEAction Staff: Espe Moreno

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I am delighted to be part of the series in which you are getting to know the #MEAction staff! My name is Espe and I am #MEAction's UK Coordinator. I am so honoured to be a part of the staff at #MEAction. I came to #MEAction via Unrest, as I was ...

Meet the Staff: Holly Latham

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It is an honor to volunteer and work for #MEAction. #MEAction came to me at a time in my illness when I was finally able to be online, do advocacy work, and find community. To understand why #MEAction’s mission and approach to activism is so important to me, we need ...

Meet the #MEAction Staff: Laurie Jones

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Meet the #MEAction Staff! Over the next couple of weeks, the staff at #MEAction will be sharing their experiences and insights into what they do and what brings them to this work. I am so thankful for this opportunity for you all to get to know this amazing group of people ...

Donate to Karina’s Legal Fund

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Over the past several years, many of us with and without ME have looked on in horror as Karina Hansen was forcibly removed from her home and institutionalized.  This was in part due to Denmark's decision to rename myalgic encephalomyelitis "bodily distress syndrome" and classify it as a psychological illness. The ...

Join the #MillionsMissing fundraising team!

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With the help of our community’s ingenuity, strength, and indomitable spirit, #MEAction has: Spearheaded a petition to release the PACE trial data, garnering over 12,000 signatures.  This was presented in the recent FOI request to release PACE data as evidence of peaceful patient involvement Launched the worldwide protest #MillionsMissing in ...

Solve ME/CFS Initiative Update

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Last year was a pivotal point in the battle against ME/CFS. Game-changing reports from the Institute of Medicine and the National Institutes of Health’s Pathways to Prevention Workshop delivered long awaited public credibility for our disease. The federal ME/CFS landscape has shifted, and there is newfound openness and awareness among ...

Support Tanya’s life-saving fundraiser

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Tanya is a remarkable young woman in desperate need of life-saving financial support. Please visit her fundraising site and share widely ...

Donate to our play about ME/CFS

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Gemma Climbs Her Mountain uses both my story and the testimony of over 200 patients to convey the awful reality of living with this disease ...