Category: Featured events

Saturday, March 28th: Crip Camp virtual screening and Q&A

At the Sundance Film Festival in January, I had the privilege of watching Crip Camp, a documentary film that premieres today on Netflix. It’s about building a community in spite of a world that excludes you; that often tries hard to deny your humanity or ignore your very existence. It’s about how that community birthed a disability

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Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders in health care to empower collaborative change. This year’s Medicine X | Change conference will be held at Stanford University in Palo Alto, California on Sept. 20 – 22, 2019. Stanford describes the conference as, “less

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Join the fight against stigma and pseudoscience in New York

This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center — and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young woman with ME.   [pullquote

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3 Ways You Can Join in a #TimeforUnrest

Update: View a recording of the call here – https://www.youtube.com/watch?v=LQWgvK1UsdQ ————————— The September kickoff of the #TimeforUnrest campaign is just around the corner, and we at #MEAction couldn’t be more excited! Last week we recorded our first community call where we got to know the Unrest team, hear about the film’s release plan and got a sneak peek into the impact campaign and its

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Attend the IACFS/ME conference this month

Where does rituximab fit in among the treatment options for ME/CFS? What is the US government’s research plan? How can I increase the chances my disability application will be or continue to be approved? What medications can I try for fibromyalgia now that morphine and related prescriptions are restricted?   Come to our international scientific

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Join the MILLIONSMISSING Chicago Protest/Day of Action

The Chicago protest #MillionsMissing will feature talks by Dr. Leonard Jason, Dr. Marcie Zinn, well-known epidemiologists; Carol Head, of Solve ME/CFS; Barbara Morrison; ME/CFS patients; and families and friends. It will take place at the James Thompson Center, 100 W. Randolph St, Chicago between 11:30am-12:30pm. Please click below to attend, learn more and donate to

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