I have started a petition as I feel the general public need to be more educated on chronic illnesses. There is little to no awareness on the impact that a chronic illness has on those diagnosed. Not all disabilities are visible. This therefore, leads to under funding from the Government, a very negative stigma of those who suffer and a lack of help from doctors.
I have taken this issue to my local MP with a very personal letter that I wrote about my struggles dealing with Arthritis and Fibromyalgia. You can read that letter here. I hope that if I can get a response and backing from my MP, I can then share the stories of others who are on a similar journey to me.
I believe the only way we can get the acknowledgement we deserve is by educating others about ME, CFS, Fibromyalgia, Arthritis and other chronic illnesses. Lets stop the ignorance now.
#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise.