I have started a petition as I feel the general public need to be more educated on chronic illnesses. There is little to no awareness on the impact that a chronic illness has on those diagnosed. Not all disabilities are visible. This therefore, leads to under funding from the Government, a very negative stigma of those who suffer and a lack of help from doctors.
I have taken this issue to my local MP with a very personal letter that I wrote about my struggles dealing with Arthritis and Fibromyalgia. You can read that letter here. I hope that if I can get a response and backing from my MP, I can then share the stories of others who are on a similar journey to me.
I believe the only way we can get the acknowledgement we deserve is by educating others about ME, CFS, Fibromyalgia, Arthritis and other chronic illnesses. Lets stop the ignorance now.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the