Creative Fundraising Initiatives for #MEAction
May 1, 2023
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Calls for immediate public release of RECOVER’s clinical trial design
Author: #MEAction
Woman with Severe ME and EDS starving to death in NHS hospital
February 22, 2023
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UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with
Moments that Warmed Our Hearts
February 14, 2023
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This community is at the heart of everything we do. With this being a centering foundation for the work that we do, it is no coincidence that we have all experienced moments that shine a light on how beautiful and heartwarming this community and our work can be! This Valentine’s Day we asked our staff
Let’s Look at #MEAction’s Top Hits from 2022
January 9, 2023
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As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing
Facets of ME: Centering ME During the Holidays
December 8, 2022
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Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!
What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults
November 16, 2022
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Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School of Tropical Medicine. As members of the NICE guideline development committee, the authors wrote this paper with GPs and primary care
#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID
November 10, 2022
5 Comments
#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.
New Diagnostic Codes for ME/CFS in the US ICD-10-CM
October 6, 2022
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Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
#MillionsMissing 2022: Activism From Home Was Beyond Impressive
September 30, 2022
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There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled. And we want to take a moment to acknowledge all of the amazing activism
#MEAction & Mayo win Grant for Diagnostic Improvement
September 22, 2022
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Amazing news! #MEAction and Mayo Clinic applied for a grant together from the Society to Improve Diagnosis in Medicine to transform the diagnostic and treatment process at Mayo Clinic Rochester for people with ME/CFS!