Covid-19 Resources for People with ME

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Category Tag: Myalgic Encephalomyelitis Chronic Fatigue Sydrome

James Strazza sits with guitar in one image, happy and healthy, and in the next image he is laying in bed very sick.

Let Us Honor the Most Severe in our Community Today!

Let us honor the most severe in our community today, Severe ME Day, Saturday, August 8th. Severe ME Day is a day of remembrance when we think of those whom we have lost to myalgic encephalomyelitis (ME), and focus on those living with severe ME. For those of you in ...

Resources for COVID-19 “Long-Haulers” from the ME/CFS Community

A growing number of people report persistent symptoms long after being infected with the SARS-CoV-2 virus. The "long-haulers," a name coined for long-term COVID-19 patients, experience ongoing fatigue, headaches, shortness of breath, muscle pain, sleep disturbances, cognitive impairments, intermittent fevers, and more. Many long-haulers reveal that these and other symptoms ...

#MEAction will Host Seminars on Post-Viral Illness for Clinicians and Covid “Long Haulers”

Press Contact: Adriane Tillman; [email protected] A cohort of COVID-19 patients are still sick months after clearing the virus, many of whom were considered “mild” cases. Scientific studies show that post-viral illness is common following large viral outbreaks. Dr. Anthony Fauci said people who are not recovering after contracting COVID-19 are ...

Researchers Expect COVID-19 will Cause Surge of Chronic Illness, including ME

Since a new coronavirus emerged from Wuhan, China late in 2019, some 3.8 million cases and 265,000 deaths have been reported world-wide. Governments are focused on treating patients acutely sick with COVID-19, the disease caused by the new virus SARS-CoV-2, and slowing the spread of the virus. However, a second ...

Meet the Scientist: Interview with Dr. Lucinda Bateman

Dr. Lucinda Bateman has treated over a thousand patients with chronic fatigue conditions since starting the Fatigue Consultation Clinic in 2000. She is the founder and Chief Medical Officer of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia in Salt Lake City, Utah. In 2015, Dr. Bateman ...

Diagnostic Criteria: Researchers and Clinicians Survey Results

Last month, we presented information about the diagnostic criteria, exploring their similarities and differences. Click here to read that article. This week, we’re reporting on a survey we sent to ME-literate researchers and clinicians. We contacted clinicians who treat or have treated people with myalgic encephalomyelitis (ME) as their main ...

Read Dr. Koroshetz Response to Our Letter Calling for Action. We Analyze His Claims.

NINDS director, Dr. Walter Koroshetz, sent the following response to #MEAction’s Oct. 21st letter calling on the NIH to take immediate actions to address the crisis of myalgic encephalomyelitis (ME). We analyze Dr. Koroshetz letter in blue text below to put his statements into context with the reality of what ...

California Activists Fight for Centers of Excellence for ME

California advocates for myalgic encephalomyelitis (ME) are fighting for the state to institute a statewide Centers of Excellence program that would train ME specialists, provide state-of-the-art treatment for people with ME, and undertake advanced research. Activists across the state have already met with 24 state legislators to discuss this initiative ...

U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS

School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, "“Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School." The ...