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Watch the Westminster Hall debate on PACE

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A Westminster Hall debate on the PACE trial will take place on Tuesday, 20th Feb., from 11 to 11:30 a.m. Carol Monaghan MP has secured the debate. Watch the Debate or Attend the Debate Follow the debate on Twitter by following @meactnetuk or @MEActNet. The debate will discuss the flawed science behind PACE, and how ...

What ME Activists Can Learn from the AIDS Crisis

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I read "How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS" by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an ...

Hold On, Firebird

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Once upon a time, I woke up on fire. This burning was one of invisible flames, curling themselves around me and offering nothing but excruciating pain and the sort of exhaustion which bears down on you like a weight your whole body must carry ...

Have you been harmed by PACE? Send a letter.

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Dr. Sarah Myhill has launched a campaign calling on all patients who feel that they have been harmed by the PACE trial to join her in writing to the General Medical Council (GMC), which oversees doctors in the UK. You do not have to be a UK citizen to participate. Dr. Myhill has ...

Urge your MP to Attend Westminster Hall Debate on PACE

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A Westminster Hall debate on the PACE trial has been scheduled for Tuesday, 20th Feb., 11-11:30 a.m. Carol Monaghan MP has secured the debate. Please urge your MP to attend the Westminster Hall debate to learn about the flawed science behind PACE, and how it has affected policy on Myalgic Encephalomyelitis ...

UC Berkeley will Host Unrest Screening

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Calling all people in the Bay Area - and beyond, You are invited to attend a screening of the Oscar-nominated documentary, Unrest, hosted by UC Berkeley's School of Public Health on Feb. 20th. Register for the FREE event today. Please take this opportunity to invite your Congressional and State representatives to educate them about Myalgic Encephalomyelitis. You ...

The Failure of Clinical Guidance for People with ME

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ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis.  The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and ...

NICE: Listen to the People

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As the U.K. prepares to review its national clinical guidelines for ME, it is high-time that the National Institute for Health and Care Excellence (NICE) listens to the evidence showing that Graded Exercise Therapy (GET) is harming people with Myalgic Encephalomyelitis. Listen to the words of the words of the director ...
THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL

THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL

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Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22,  No 9, Aug. 2017 Publication date: 31 July 2017 http://journals.sagepub.com/toc/hpqa/current   A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution ...

NICE 2017 response

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10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) (2007) NICE guideline CG53 Stakeholder consultation comments form - proposal for ‘no update’ Consultation on the proposal for ‘no update’ opens on: 9am Monday, 10 July 2017 ​ Comments on proposal to be submitted: no later than 9am Monday, 24 July 2017 Organisation name ...
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