Virtual #MillionsMissing 2020

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People hold hands over language that reads #MillionsMissing

#MillionsMissing 2020 was powerful (full report)!

*We added an update below. Videos like the "I got a virus" video from #MEAction UK and #MEAction Scotland were viewed over 90k times on multiple platforms. Better than originally reported! Dear Friends, You are amazing. You made #MillionsMissing impactful, powerful, and moving. This virtual year no doubt had it's ...

Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.

Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic ...

Equip yourself to fight disinformation!

Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been flooded with disinformation about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According ...

NIH announces two new funding opportunities for ME

On April 13, NIH announced two new funding opportunities for ME/CFS research: PAR-20-165, Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R01 Clinical Trials Not Allowed)PAR-20-168, Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R21 Clinical Trials Not Allowed) What is an R01? What is an R21? R01 and R21 are two ...

We Are Essential Campaign

#MEAction is going to embark on a four week campaign, #WeAreEssential, asking Congress to recognize that the disability/chronic illness community is ESSENTIAL and must be included in the next Covid-19 packages ...

Saturday, March 28th: Crip Camp virtual screening and Q&A

At the Sundance Film Festival in January, I had the privilege of watching Crip Camp, a documentary film that premieres today on Netflix. It's about building a community in spite of a world that excludes you; that often tries hard to deny your humanity or ignore your very existence. It's ...

Resources for parents with ME during COVID-19

Parents with ME have had to learn to be creative and flexible in their parenting.This will be key in responding to parenting during a pandemic. We have taught our children to wash their hands in hopes of avoiding seasonal illness. We have managed school holidays and cancelled plans. We can ...

Send your stories for London #MillionsMissing

Exciting News for 2020! #MillionsMissing London is in Parliament Square on 13th May. London will play host to a major demonstration aimed at highlighting the plight of ME sufferers across the globe. London #Millions Missing is thrilled to announce that they are collaborating with the Florence Nightingale Museum in her ...