The National Institute for Health and Care Excellence (NICE) have released a document entitled “interim findings”, stating that the recommendation of graded exercise therapy for mild and moderate ME/CFS should not apply to people with fatigue following COVID-19. They note that the existing guideline was published in 2007, many years before the pandemic, and that they are aware of concerns around graded exercise therapy.
An Interview with JD Davids: Lessons from an Illder (Chronically Ill Elder) on Pride, activism, and accessibility
JD Davids holding a protest sign that reads ACT UP and Occupy Wall Street End AIDS. JD Davids speaking into a microphone at a protest. JD Davids is a writer, an advocate and an #MEAction Board member. He has more than 25 years of experience in health activism, social movements, policy and journalism and he
Since the coronavirus pandemic hit, #MEAction has pitched news stories and worked with major news outlets to sound the alarm that COVID-19 patients are at risk of developing myalgic encephalomyelitis (ME) and other chronic illnesses. In the past month, #MEAction has worked to tell this story in The Washington Post, The Atlantic and Bustle! As
Accessible Ways that People with ME can get Involved in Racial Justice #MEAction has always focused on empowering and supporting our community. We know that many people with ME are wanting to show support for racial justice and it is often difficult to know how to engage from home. Here are some accessible ways that
George Floyd. Breonna Taylor. Ahmaud Arbery. Tony McDade. There is so much pain, suffering, grief, and anger across the United States and around the world. As healthcare activists and advocates, we have seen time and time again that Black individuals face discrimination not just in their doctors’ offices but in every aspect of their lives.
*We added an update below. Videos like the “I got a virus” video from #MEAction UK and #MEAction Scotland were viewed over 90k times on multiple platforms. Better than originally reported! Dear Friends, You are amazing. You made #MillionsMissing impactful, powerful, and moving. This virtual year no doubt had it’s challenges, but it was beautiful
Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME – also known as
On April 13, NIH announced two new funding opportunities for ME/CFS research: PAR-20-165, Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R01 Clinical Trials Not Allowed) PAR-20-168, Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (R21 Clinical Trials Not Allowed) What is an R01? What is an R21? R01 and R21 are two common types of funding