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Category Archives: Uncategorized

Erin Roediger: Igniting a Fire for ME

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As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose: to be part of igniting the fire for change in the world. While it took me a while to determine that purpose, this truth has always been a driving force in ...

Historic Congressional Resolution Passes for ME!

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Senate Resolution passed! This is a great victory for all people with ME ...

Parents and Children Missing from their Lives due to M.E.

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Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are missing precious days and years with their children due to the disease, and parents of children with ME are fighting to provide care for their sick children in a world where there ...

#MEAction Drafts Response to NIH’s Request for Information

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NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis.   With only a few weeks’ turn-around, the #MEAction NIH working group met and was able to produce ...

Meet The Scientist: Professor Anthony Komaroff

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Anthony Komaroff, MD, is the distinguished Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women's Hospital in Boston. He has published over 230 research articles and two books. From 1997-2015 he was editor in chief of the Harvard Health Publications Division of Harvard Medical School, the division responsible for disseminating ...

Celebrating Our Wins for ME!

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It has been been an exciting time for the myalgic encephalomyelitis (ME) community these past few weeks. We are in awe of the sacrifices and hard work people with ME and their allies have made to make their voices heard.     #MEAction and the Solve ME/CFS Initiative organized the largest Advocacy Day ever ...

Advocacy Week Local Actions

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***UPDATE: THIS ACTION IS NOW OVER***   ADVOCACY WEEK LOCAL ACTIONS As many of you know, Advocacy day is April 3rd in DC. Activists will be traveling from around the United States to have meetings with their elected officials to demand recognition and action for people with ME. No matter if you are ...

Meta-Analysis Shows Blunted Heart Rate Contributes to Activity Intolerance in People with ME

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The Workwell Foundation issued the press release below about its meta-analysis of 20 years of studies that shows "overwhelming evidence" of chronotropic incompetence in people with ME/CFS, which contributes to activity intolerance in people with myalgic encephalomyelitis (ME).  A normal response to exercise is an increase in heart rate. Failure of the heart to ...

Fighting for Rigorous Science and Accurate Reporting

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On March 13, Reuters published an article, "Special Report: Online activists are silencing us, scientists say". Reuters used their platform to promote discredited, pseudoscientific treatments and to frame people with ME as violent activists. The article was also picked up in the New York Post, who re-published the content uncritically. #MEAction ...
Photo of Professor Don Staines

Meet the Scientists: Australia’s Prof. Don Staines

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‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We ask them about their current research and get to meet the people working to improve our health. The series introduces early career researchers through to interviewing scientists and clinicians who have been working ...