Ben HsuBorger, Author at #MEAction Network

ME/CFS Neglect Kills. Act Up. Fight Back. #MEAction. Red tinted image with protestors laying on grass in front of White House with grave stones. Protestor raises one clenched fist above head.

My Truth, Our Trauma, & A Call to Keep Fighting

December 7, 2022 No Comments

Reflections from the World AIDS Day White House Protest

Background photo of White House and lawn between two trees, tinted red. Bold text: "Fund Pandemic Plans" Below in small text: "World AIDS Day 2022"

Take Action Virtually with our White House Protest

November 30, 2022 No Comments

AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans

Large bold text, on an angle reads: Join us for World AIDS Day to End Pandemic Nightmares. Dec 1 12 PM EST outside the White House and online everywhere. Below, a person of color in a face mask with a sign reading "HIV, Long COVID and ME/CFS, COVID-19, Ebola, cholera, monkeypox, TB, and more." Next to a white person in a face mask holding a sign reading "End COVID Everywhere." Below are the logos of organizational co-sponsors: Health GAP, Universities for Access to Essential Medicines, ACT UP New York, ACT UP Philadelphia, Long COVID Justice, Black and Latinx Community Control of Health, MEAction, The Peoples Vaccine, CPD Action, Spaces in Action, Strategies for High Impact, Access is Global.

On World AIDS Day, We’re Taking Action at the White House

November 23, 2022 No Comments

White House Must Confront Global Health Nightmare of Colliding Pandemics

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

November 22, 2022 1 Comment

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

BOLD ACTION is a Commitment to Healthcare Justice for People with ME

November 21, 2022 No Comments

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking BOLD ACTION is both a

hand holding a paper sheet with injustice, unfairness symbol over crowded street background.

Tell HHS about your experience of healthcare discrimination

September 29, 2022 No Comments

People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice. The deadline to submit a

NIH Extends Funding for ME/CFS Research Centers

September 7, 2022 No Comments

The National Institutes of Health (NIH) has taken steps to fix a “funding gap” in the timing of research awards for the ME/CFS Collaborative Research Centers (CRC) and the Data Management and Coordinating Center (DMCC). The currently-funded research centers which apply, and are approved, for another 5-year term will no longer face a 7-month funding

Dept. of Labor hosts dialogue on Long COVID in the workplace

July 22, 2022 1 Comment

The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to people with Long COVID, #MEAction

NIH Comes up Short Once Again

February 17, 2022 7 Comments

No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has announced their intent to extend the ME/CFS Collaborative Research Center (CRC) program, first launched in 2017, beyond its initial 5-year lifetime. They have issued a $7.1M annual funding opportunity for the ME/CFS CRCs, and another $500K

National Institutes of Health campus buildings from above

NIH Long COVID research lacks clear plan to identify and track ME/CFS

January 14, 2022 2 Comments

MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular importance because a sizable fraction

Author: Ben HsuBorger