Article written by Rebecca Hansen, Chairman of the Danish ME Association
The Danish Health Authority (SST) released their new treatment recommendations for Myalgic Encephalomyelitis (ME) patients on June 18 as part of a guideline called “Physical Training as Treatment.”
The chapter on ME is nothing short of medical abuse.
It defines ME as fatigue and ...
Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for ME.
MPs called for the immediate removal of Graded Exercise Therapy (GET) from the NICE guidelines, as patients have consistently reported being harmed from attempting to undergo this ...
What would have been the outcome of the PACE trial had the investigators followed its original protocol instead of relaxing the criteria for “recovery” as the trial progressed?
Researchers have just published a paper seeking to answer this question in a reanalysis of the PACE trial based on its original ...
Members of Parliament heard about the flaws of the PACE Trial - and its devastating effects on people with Myalgic Encephalomyelitis (ME) - in a Westminster Hall debate today. Twenty-six MPs attended the debate ...
A member of #MEAction Network Australia has written a primer, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS ...
ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis.
The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and ...
The 2011 PACE trial examined the effect of graded exercise therapy and cognitive behavioural therapy against standard medical care, but refused to share their data.
West Australian Alem Matthees filed a UK Freedom of Information Act. The ruling released the data and further examination found glaring problems with the study ...
A member of the Shaw family reads their testimony during the comment period at the January CFSAC meeting:
Good afternoon. I have had untreated ME/CFS for 38 years. Our testimony today is on the topic of the Center for Diseases Control’s (CDC) CFS group.
The 2015 National Academy of Medicine report ...
Note: This is the final part of our series on education in ME/CFS. To start reading at the first article in this series, Top Medical Schools Teach Little About ME/CFS, click here.
Finding a physician with knowledge of ME can be challenging, but practitioners of three branches of alternative medicine may ...
This is the "new" studie some doctors are trying to move around Spain with the recomendations of using CBT and GET in patients of CFS at the age range of 12-17 ...
