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#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

To learn more, email jaime@meaction.net.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.

Contact jaime@meaction.net to learn more!


Enroll in a Research Study

Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to ...
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Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
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Enrolling: Bateman-Horne InTime Drug Intervention Trial

The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness ...
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Enrolling: Stanford Neuroendocrine Investivagtion

Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ...
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Enrolling: Cornell Brain Imaging

Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress ...
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Enrolling: 23andMe Genetic Testing Study

The Institute of NeuroImmune Medicine is collecting genetic data from 23andme or ancestry.com for 10,000 patients. Their aim is to ...
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Enrolling: Stanford School of Medicine Brain Tissue Bank

  Brain tissue banks are able to provide ME researchers with samples to keep their research moving forward; Dr. Montoya and ...
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Enrolling: Cornell Exercise Testing Study

Who: Cornell Center for Enervating Neuroimmune Disease What: The Center is collecting information from both ME patients and sedentary controls. You will first have a quick ...
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Research News

Neuroinflammation review by #MEAction research fellows

Though science may speed along a bit fast to 'catch' on audio, you can also listen to me read this ...
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How Does ME Research Fare? Check Out these Piecharts.

Research scientist, Dr Mark Guthridge, PhD, from Melbourne Australia created this piechart to show that of these 13 diseases, people ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to ...
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Study Shows that Red Blood Cells are Stiffer in People with ME

Researchers have published a paper that shows various measures of deformability in the red blood cells of people with Myalgic ...
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2018 ME/CFS Research Summary

Commissioned and originally published by the Solve ME/CFS Initiative. Be sure to check out their interactive guide here. Follow Rochelle ...
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A Year in Review: Celebrating the 2018 Achievements of Our Community

2018 has been a big year at #MEAction!  Thank you to all of you who have put forth immense efforts to ...
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Post-interferon fatigue study: a mixed bag

A study scheduled for our December research roundup entered the limelight yesterday due to an SMC campaign in the UK. The study ...
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Journal Publishes Article about ME Biobank

Frontiers in Neurology, an open-access journal, published an article about the UK ME/CFS Biobank this week. This narrative paper describes the ...
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Study Shows Red Blood Cells Less Deformable in ME Patients – Possible Biomarker

Written by Ronald W. Davis, PhD This paper documents that red blood cells are less deformable in ME/CFS patients compared to ...
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Study Examines Link between Immune Dysfunction and Metabolism in ME

This article was first published on ME Australia.  An international collaboration of scientists, including Fane Mensah, Jo Cambridge and Australia's Chris ...
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