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#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

To learn more, email jaime@meaction.net.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.

Contact jaime@meaction.net to learn more!


Enroll in a Research Study

Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ...
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Enrolling: Harvard brain scan PEM study — local only

Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston ...
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Enrolling: Take an online survey to give feedback on a new app for ME

Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ME/CFS” for ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to ...
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Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
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Enrolling: Bateman-Horne InTime Drug Intervention Trial

The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness ...
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Enrolling: Stanford Neuroendocrine Investivagtion

Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ...
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Enrolling: Cornell Brain Imaging

Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress ...
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Research News

Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ...
Read More

Get involved: support science and advocacy this April

April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a ...
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Enrolling: Harvard brain scan PEM study — local only

Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston ...
Read More

Enrolling: Take an online survey to give feedback on a new app for ME

Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ME/CFS” for ...
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A loss to the ME community: Jonas Blomberg

You can listen to this article read aloud by visiting #MEAction's Soundcloud here. It is with a heavy heart that we ...
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Extended deadline – Attend the NIH Conference with a Scholarship from #MEAction!

#MEAction is currently accepting applications from medical students and practicing medical professionals to attend the National Institutes of Health meeting on myalgic ...
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Neuroinflammation review by #MEAction research fellows

Though science may speed along a bit fast to 'catch' on audio, you can also listen to me read this ...
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How Does ME Research Fare? Check Out these Piecharts.

Research scientist, Dr Mark Guthridge, PhD, from Melbourne Australia created this piechart to show that of these 13 diseases, people ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to ...
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Study Shows that Red Blood Cells are Stiffer in People with ME

Listen to the article:      Researchers have published a paper that shows various measures of deformability in the red blood cells of ...
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