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#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

To learn more, email jaime@meaction.net.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.

Contact jaime@meaction.net to learn more!


Enroll in a Research Study

Enrolling: EDS Genetics Study

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a ...
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Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to use ...
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Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ...
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Enrolling: Harvard brain scan PEM study — local only

Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston ...
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Enrolling: Take an online survey to give feedback on a new app for ME

Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ME/CFS” for ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to ...
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Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
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Enrolling: Bateman-Horne InTime Drug Intervention Trial

The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness ...
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Research News

Introducing #MEAction’s 2019 ME Research Summary

We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic ...
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Enrolling: EDS Genetics Study

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a ...
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Read #MEAction’s Request for Information response to the NIH

The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a ...
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Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to use ...
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$1M Biobank Project for Australia

A charitable trust, the Mason Foundation, is asking researchers to submit proposals for a biobank and patient registry as well ...
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#MEAction Medical Travel Scholarship Award Winners

#MEAction Medical Travel Scholarship   Because of the generous donation from a private family foundation, #MEAction has been able to provide travel ...
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Australian Government Announces $3M for ME/CFS Research

Australia’s Health Minister Greg Hunt has today announced $3M for research into ME/CFS. Minister Hunt notes that “funding will be ...
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Meta-Analysis Shows Blunted Heart Rate Contributes to Activity Intolerance in People with ME

The Workwell Foundation issued the press release below about its meta-analysis of 20 years of studies that shows "overwhelming evidence" of chronotropic incompetence ...
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Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ...
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Get involved: support science and advocacy this April

April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a ...
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