Virtual #MillionsMissing 2020

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#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.


Enroll in a Research Study

Enrolling studies: Internet-Based Participation

What: Researchers at Southern Connecticut State University are currently enrolling individuals in a study that will examine an intervention app ...
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Enrolling: Naviaux Lab Metabolomics Study

Who: Looking for adult women with ME, Lyme's Disease (post-treatment), or healthy controls that are currently living in Southern California ...
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Enrolling: EDS Genetics Study

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a ...
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Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to ...
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Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants ...
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Enrolling: Harvard brain scan PEM study — local only

Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston ...
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Enrolling: Take an online survey to give feedback on a new app for ME

Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used ...
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Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Research News

Citizen science highlights non-recovery in COVID-19 patients

Recently, #MEAction received what may be the first, participant-led analysis of COVID-19, entitled What Does COVID-19 Recovery Actually Look Like? ...
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Researchers Expect COVID-19 will Cause Surge of Chronic Illness, including ME

Since a new coronavirus emerged from Wuhan, China late in 2019, some 3.8 million cases and 265,000 deaths have been ...
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NIH announces two new funding opportunities for ME

On April 13, NIH announced two new funding opportunities for ME/CFS research: PAR-20-165, Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) ...
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Medical Education Event London #MEActionUK

Invite your Doctor to learn about ME – Medical Education Event in London

March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event ...
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Meet the Scientist: Interview with Dr. Lucinda Bateman

Dr. Lucinda Bateman has treated over a thousand patients with chronic fatigue conditions since starting the Fatigue Consultation Clinic in ...
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Enrolling studies: Internet-Based Participation

What: Researchers at Southern Connecticut State University are currently enrolling individuals in a study that will examine an intervention app ...
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Marcie Zinn was a Force for ME

We are deeply saddened by the sudden death of Marcie Zinn, PhD, who was a dedicated researcher, advocate and person ...
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Why U.S. ME/CFS Clinician Coalition Uses IOM Criteria to Educate Clinicians

A year and a half ago in March of 2018, many of the leading U.S. ME/CFS clinicians came together for ...
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NeuroCognitive Research Institute is Back in Business, Assessing People with ME!

Mark and Marcie Zinn are once again conducting assessments and producing elaborate reports to help patients! ...
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Diagnostic Criteria: Researchers and Clinicians Survey Results

Last month, we presented information about the diagnostic criteria, exploring their similarities and differences. Click here to read that article ...
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