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#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

To learn more, email jaime@meaction.net.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.

Contact jaime@meaction.net to learn more!


Enroll in a Research Study

Enrolling: Naviaux Lab Metabolomics Study

Who: Looking for adult women with ME, Lyme's Disease (post-treatment), or healthy controls that are currently living in Southern California ...
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Enrolling: EDS Genetics Study

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a ...
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Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to use ...
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Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ...
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Enrolling: Harvard brain scan PEM study — local only

Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston ...
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Enrolling: Take an online survey to give feedback on a new app for ME

Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ME/CFS” for ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to ...
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Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
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Research News

Attend the 3rd Annual Community Symposium on Molecular Basis of ME/CFS – Register to Attend or Watch

Stanford University is holding its 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University on Saturday, Sept. 7, 2019, sponsored ...
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Researchers, Clinicians and Patients: Submit a Manuscript on ME to WORK Journal

Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal of ...
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#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center

Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, ...
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Announcing #MEAction’s Blue Ribbon Fellow: Investigating the Role of Folate in ME

The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has been ...
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Enrolling: Naviaux Lab Metabolomics Study

Who: Looking for adult women with ME, Lyme's Disease (post-treatment), or healthy controls that are currently living in Southern California ...
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The ME/CFS Harvard Collaboration Holds its First Symposium

 By Christopher Armstrong, PhD, OMF Science Liaison  When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last year with ...
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Introducing #MEAction’s 2019 ME Research Summary

We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic ...
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Enrolling: EDS Genetics Study

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a ...
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Read #MEAction’s Request for Information response to the NIH

The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a ...
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Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to use ...
Read More