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#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

To learn more, email jaime@meaction.net.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.

Contact jaime@meaction.net to learn more!


Enroll in a Research Study

Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
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Enrolling: Bateman-Horne InTime Drug Intervention Trial

The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness ...
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Enrolling: Stanford Neuroendocrine Investivagtion

Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ...
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Enrolling: Cornell Brain Imaging

Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress ...
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Enrolling: 23andMe Genetic Testing Study

The Institute of NeuroImmune Medicine is collecting genetic data from 23andme or ancestry.com for 10,000 patients. Their aim is to ...
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Enrolling: Stanford School of Medicine Brain Tissue Bank

  Brain tissue banks are able to provide ME researchers with samples to keep their research moving forward; Dr. Montoya and ...
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Enrolling: Cornell Exercise Testing Study

Who: Cornell Center for Enervating Neuroimmune Disease What: The Center is collecting information from both ME patients and sedentary controls. You will first have a quick ...
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Enrolling: Bateman-Horne Center Biomarker Study

Help advance biomarker research! The Bateman-Horne Center is actively recruiting patients and healthy controls who are eager to participate by ...
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Research News

Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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UPDATE: Cochrane Has NOT Removed “Exercise Therapy for CFS” Review

It appears that Cochrane will NOT temporarily remove a review from its database that claims exercise therapy is effective for chronic ...
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Cochrane Temporarily Removes Review of “Exercise Therapy for CFS”

Cochrane has temporarily removed a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) ...
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UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Emerge Australia Releases Report on National Survey of ME Patients

Emerge Australia has released a report on the findings of a survey of more than 600 Australians with ME/CFS. The ...
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POTS and Beyond Conference 2018

The POTS and Beyond conference held in Salt Lake City this past weekend brought together experts in the field to ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
Read More

Enrolling: Bateman-Horne InTime Drug Intervention Trial

The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness ...
Read More

Join the Stanford Community Symposium via Livestream

The Stanford Genome Technology Center will host the Second Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by ...
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