#MEAction Research Actions

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#MEAction aims to grow the scientific field through outreach, education, and fellowship opportunities for young investigators, and by empowering patients to understand, engage with and participate in research.

How to get involved

Researchers and clinicians

  • If you’re a researcher interested in learning more about this field, start here to browse a list of resources.
  • If you’re currently in the field, we’d love to support you by disseminating information about your work to the community by:
  • We’re also always looking for researchers and students to contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.

To learn more, email jaime@meaction.net.

Patients & community

There are so many ways you can help support research and the generation and dissemination of scientific knowledge about ME.

Contact jaime@meaction.net to learn more!

Enroll in a Research Study

Enrolling: Naviaux Lab Metabolomics Study

Who: Looking for adult women with ME, Lyme's Disease (post-treatment), or healthy controls that are currently living in Southern California ...
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Enrolling: EDS Genetics Study

What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a ...
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Enrolling: Stony Brook University ANS Study

Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to ...
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Enrolling: NIH Intramural Study

Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants ...
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Enrolling: Harvard brain scan PEM study — local only

Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston ...
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Enrolling: Take an online survey to give feedback on a new app for ME

Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ...
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Enrolling: NIH Focus Group on PEM

Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used ...
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Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of ...
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Enrolling: White Matter Evaluation with Stanford University

Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within ...
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Take the NYU Research Survey about your ME Experience

I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...
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Research News

Marcie Zinn was a Force for ME

We are deeply saddened by the sudden death of Marcie Zinn, PhD, who was a dedicated researcher, advocate and person ...
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Why U.S. ME/CFS Clinician Coalition Uses IOM Criteria to Educate Clinicians

A year and a half ago in March of 2018, many of the leading U.S. ME/CFS clinicians came together for ...
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NeuroCognitive Research Institute is Back in Business, Assessing People with ME!

Mark and Marcie Zinn are once again conducting assessments and producing elaborate reports to help patients! ...
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Diagnostic Criteria: Researchers and Clinicians Survey Results

Last month, we presented information about the diagnostic criteria, exploring their similarities and differences. Click here to read that article ...
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NIH: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

NINDS Institute director, Dr. Walter Koroshetz, has made it clear that neither he nor the National Institutes of Health (NIH) ...
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Read Dr. Koroshetz Response to Our Letter Calling for Action. We Analyze His Claims.

NINDS director, Dr. Walter Koroshetz, sent the following response to #MEAction’s Oct. 21st letter calling on the NIH to take ...
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Demystifying the Diagnostic Criteria for ME and Related disease

Introduction (first section, not linked) Misconceptions regarding diagnostic criteria The Oxford Criteria The Ramsay Definition The Fukuda Criteria The Canadian ...
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Meet the Scientist: Dr. Dane Cook

Dane Cook is Professor of Kinesiology at the University of Wisconsin and Director of the March Center for Research in ...
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ME Services in the UK Not Fit for Purpose

A recent survey conducted by #MEAction UK found that UK specialist myalgic encephalomyelitis (ME) services are not fit for purpose ...
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Cochrane Analysis: What’s Here, What’s missing, Conclusions

Exercise therapy for chronic fatigue syndrome Lillebeth Larun, Kjetil G Brurberg, Jan Odgaard-Jensen, and Jonathan R Price Editorial group: Cochrane ...
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