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Category Archives: Enrolling studies

Participate in the Creation of a Mobile App for pwME through an Online Survey

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Listen to the article:  Who: Doctors from Columbia Medical center are interested in creating a mobile app called “my ME/CFS” for those with Myalgic Encephalomyelitis (ME). What: A survey that would provide information to doctors that are aiming to create this application; the app would provide a place for individuals with ME ...

Enrolling: NIH Focus Group on PEM

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Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to learn more about PEM in daily life as well as to hear about your experiences with Cardio Pulmonary Exercise Testing (CPET) if you have experienced it. Who: The study is run out ...

Enrolling: Online Pediatric Research Survey

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As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of the symptoms and experiences of youth with ME/CFS by conducting a research survey. Who: The Center for Community Research at DePaul University When: Ongoing What: We would like to invite children/adolescents (ages 5-17) with myalgic encephalomyelitis ...

Enrolling: White Matter Evaluation with Stanford University

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Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within the right hemisphere. It is crucial to further the research involved with these findings as they may lead to more definitive diagnoses of ME. Who: Dr. Montoya and Dr. Zeineh at the Stanford School of Medicine When: Ongoing What: Replication ...

Take the NYU Research Survey about your ME Experience

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I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...

Enrolling: Bateman-Horne InTime Drug Intervention Trial

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The InTime Trial aims to assess the effects of the investigational drug, CT38, in terms of its safety and effectiveness in treating ME/CFS. There will be 18 people between 18 and 60 years of age enrolled in this study and participation will last up to approximately 4 months. Who: Dr. Lucinda Bateman, ...

Enrolling: Stanford Neuroendocrine Investivagtion

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Researchers from Stanford University aim to evaluate the endocrine system in female ME patients to learn how the hypothalamic-pituitary-adrenall (HPA) axis functions in ME/CFS patients. They will do this by evaluating antibodies in 60 ME/CFS cases and through basic endocrine testing. Who: Dr. Montoya at Stanford University is collaborating with Dr. De Bellis at Secondary University ...

Enrolling: Cornell Brain Imaging

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Cornell Center for Enervating Neuroimmune Disease aims to collect brain images (MRSs) from individuals with ME to study oxidative stress and neuroinflammation. Dr. Dikoma Shungu hopes to identify possible biomarkers for ME as well as add to the overall understanding of the disease. Who: Cornell Center for Enervating Neuroimmune Disease is collecting information from ...

Enrolling: 23andMe Genetic Testing Study

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The Institute of NeuroImmune Medicine is collecting genetic data from 23andme or ancestry.com for 10,000 patients. Their aim is to generate computer learning programs will search for biomarkers that can be used to develop drug targets and diagnostic tests. Who: Dr. Klimas and Dr. Bested at NSU (Institute of Neuro Immune Medicine) When: Ongoing What: Click here to learn more. When: Ongoing Where: Samples will be delivered ...

Enrolling: Stanford School of Medicine Brain Tissue Bank

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  Brain tissue banks are able to provide ME researchers with samples to keep their research moving forward; Dr. Montoya and Dr. Plowey are accepting brain tissue from ME patients postmortem.  Studying the brain tissue of ME patients is an important part of understanding more about the disease overall. Who: Dr. Montoya and Dr. Plowey ...