Advocacy Week Local Actions

***UPDATE: THIS ACTION IS NOW OVER***

 

ADVOCACY WEEK LOCAL ACTIONS

As many of you know, Advocacy day is April 3rd in DC. Activists will be traveling from around the United States to have meetings with their elected officials to demand recognition and action for people with ME. No matter if you are in DC in person, or you are participating virtually, your actions are important and can really make a difference to the offices of our Senators! Actions for your Representatives are coming soon!

Here are the three ways you can get involved if you are not traveling to DC:

  1. Senate Call-Action Handbook
  2. Social Media Handbook
  3. Local Meeting Handbook

The Call-Action Handbook provides you with scripts to call your Senators to ask them to take action for the millions of people with ME. While the Social Media Handbook, provides you with some selfie ideas and sample posts/images to share on April 3rd. We hope to have a large social media imprint on April 3rd and your posts can make that happen And for those of you who are interested in meeting locally in the district office of your Member of Congress, we created the Local Meeting Handbook for you to reference.


From your own home, you can make a difference. In fact, your actions matter greatly!

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Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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