Holiday Win: 42 Members of Congress Sign on to Support People with ME/CFS

 

Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter to the U.S. Department of Health and Human Services (HHS) in support of people with ME/CFS.

The bicameral letter was sponsored by Senator Ed Markey (MA) in the Senate and Congresswoman Anna Eshoo (CA-18) in the House of Representatives. The letter was drafted as an urgent response to the sudden termination of the Chronic Fatigue Syndrome Advisory Committee (CFSAC). The letter does the following:

(1) States that more must be done by HHS to address ME/CFS needs,

(2) Describes the challenges we face,

(3) Requests that HHS explain how it will fill the gap left by the September 2018 dissolution of CFSAC,

(4) Poses detailed questions regarding National Institutes of Health and Centers for Disease Control activities for ME/CFS, and

(5) Requests a formal response from HHS by January 12, 2019.

The letter was signed by:

STATE   NAME TWITTER FACEBOOK
CA Dianne Feinstein @SenFeinstein www.facebook.com/SenatorFeinstein/
CA Kamala D. Harris @SenKamalaHarris www.facebook.com/SenatorKamalaHarris/
CT Richard Blumenthal @SenBlumenthal www.facebook.com/SenBlumenthal
DE Christopher A. Coons @ChrisCoons www.facebook.com/senatorchriscoons
MA Edward J. Markey @SenMarkey www.facebook.com/EdJMarkey
MA Elizabeth Warren @SenWarren www.facebook.com/senatorelizabethwarren
MD Chris Van Hollen @ChrisVanHollen www.facebook.com/chrisvanhollen/
ME Angus S. King, Jr. @SenAngusKing www.facebook.com/SenatorAngusSKingJr
MI Debbie Stabenow @SenStabenow www.facebook.com/SenatorStabenow/
NJ Cory A. Booker @SenBooker
NV Catherine Cortez Masto @SenCortezMasto www.facebook.com/SenatorCortezMasto/
OH Sherrod Brown @SenSherrodBrown      www.facebook.com/SenatorSherrodBrown/
PA Robert P. Casey, Jr. @SenBobCasey www.facebook.com/SenatorBobCasey
WA Maria Cantwell @SenatorCantwell www.facebook.com/senatorcantwell/

 

 STATE    REPRESENTATIVES    TWITTER  FACEBOOK
AZ-03 Raúl M. Grijalva @RepRaulGrijalva www.facebook.com/Rep.Grijalva
AZ-09 Kyrsten Sinema @RepSinema www.facebook.com/CongresswomanSinema/
CA-02 Jared Hoffman @RepHuffman www.facebook.com/RepHuffman
CA-06 Doris Matsui @DorisMatsui www.facebook.com/doris.matsui
CA-11 Mark DeSaulnier @RepDeSaulnier www.facebook.com/RepMarkDeSaulnier
CA-13 Barbara Lee @RepBarbaraLee www.facebook.com/RepBarbaraLee
CA-14 Jackie Speier @RepSpeier www.facebook.com/JackieSpeier
CA-15 Eric Swalwell @RepSwalwell www.facebook.com/CongressmanEricSwalwell
CA-18 Anna G. Eshoo @RepAnnaEshoo ‏ www.facebook.com/RepAnnaEshoo
CA-19 Zoe Lofgren @RepZoeLofgren www.facebook.com/zoelofgren
CA-26 Julia Brownley @JuliaBrownley26 www.facebook.com/RepJuliaBrownley
CA-33 Ted Lieu @RepTedLieu www.facebook.com/RepTedLieu
CA-47 Alan Lowenthal @RepLowenthal www.facebook.com/RepLowenthal
CO-06 Mike Coffman @RepMikeCoffman www.facebook.com/repmikecoffman
CO-07 Ed Perlmutter @RepPerlmutter www.facebook.com/RepPerlmutter
CT-05 Elizabeth H. Esty @RepEsty www.facebook.com/RepEsty
GA-05 John Lewis @repjohnlewis www.facebook.com/RepJohnLewis
MA-02 Jim McGovern @RepMcGovern www.facebook.com/RepJimMcGovern/
MA-04 Joseph P. Kennedy, III @RepJoeKennedy www.facebook.com/CongressmanJoeKennedyIII/
MA-05 Katherine Clark @RepKClark https://www.facebook.com/CongresswomanKatherineClark/
MA-06 Seth Moulton @teammoulton www.facebook.com/RepMoulton
MA-08 Stephen F. Lynch @RepStephenLynch www.facebook.com/repstephenlynch
MD-08 Jamie Raskin @RepRaskin www.facebook.com/RepRaskin/
MD-02 C.A. Dutch Ruppersberger @Call_Me_Dutch www.facebook.com/RepDutchRuppersberger
ME-01 Chellie Pingree @chelliepingree www.facebook.com/ChelliePingree/
NH-02 Ann McLane Kuster @RepAnnieKuster www.facebook.com/CongresswomanAnnieKuster
NJ-12 Bonnie Watson Coleman @RepBonnie www.facebook.com/RepBonnie/
OH-14 David Joyce DaveJoyceOH14 www.facebook.com/DaveJoyceOH/
Send a Thank-you note!

If your member of Congress is listed above, please thank them for their support! Please sign our ME/CFS Community thank you card here. Please also consider thanking them on social media. Member twitter handles and Facebook pages are listed above. If your members of Congress are not listed, please reach out to their offices and ask why they did not sign, and what we can do to obtain their support next time.
This month’s joint action on Capitol Hill was executed as a partnership among #MEAction, the Solve ME/CFS Initiative, and the Massachusetts ME/CFS & FM Association.
Please consider supporting our advocacy work by making a donation to #MEAction. We understand if you are unable to donate at this time, so please consider sharing our work with your friends, family and social media community. 
[maxbutton id=”21″ url=”https://meaction.net/donate” text=”Support our Work” ]

Facebook
Twitter
WhatsApp
Email

2 thoughts on “Holiday Win: 42 Members of Congress Sign on to Support People with ME/CFS”

  1. Thank you all for your support! We are at such a critical time for ME/CFS. There needs to be continued research and focus on pushing toward a cure. You have been a critical part of getting us where we are so far and keeping the momentum going is key. Thanks again for stepping forward.

Comments are closed.

Latest News

DHSC released a new progress Report

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

Read More »
Gold fireworks lighting up over a black background. The words, TOP HITS 2022 is in the center in white lettering. the words: #MEAction accomplished a lot last year is undernether with the #MEAction logo

Let’s Look at #MEAction’s Top Hits from 2022

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

Read More »
A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top