by Kim Gurav and Susan Cole
#MEAction Scotland volunteers have been called before the Scottish Parliament’s Petitions Committee on Thursday, 7th June to give evidence on their petition to review treatment of ME patients in Scotland.
The petition has received 7,000 signatures, and calls on the Scottish Government to invest in biomedical research into ME, patient care and ME education for health professionals. Not all petitioners are called before the Parliament’s Petitions Committee, so the fact that we have been is very encouraging.
Thank you so much to everyone who has signed and shared the petition – with just a week to go, we still need your help.
It would really strengthen our case if as many constituents/residents as possible emailed the MSPs on the Petitions Committee to explain how important the petition is to them (and thousands of others like them). We’ve provided all the details below to make it really easy.
If your MSP is not on the Committee, please email your own MSP (template provided below) and ask them to support the petition.
TAKE ACTION: If you are a constituent of one of the Committee members:
Petitions Committee Members – Constituency MSPs:
FALKIRK EAST – Angus MacDonald. Angus.MacDonald.firstname.lastname@example.org
ETTRICK, ROXBURGH and BERWICKSHIRE – Rachael Hamilton. Rachael.Hamilton.email@example.com
STRATHKELVIN and BEARSDEN – Rona Mackay. Rona.Mackay.firstname.lastname@example.org
GLASGOW and SOUTH SCOTLAND – the two remaining members of the committee, Johann Lamont and Brian Whittle, are Regional rather than Constituency MSPs. So anyone who lives in Glasgow can contact Johann Lamont (Johann.Lamont.email@example.com)
and anyone who lives in the South Scotland region – see below for map – can email Brian Whittle (Brian.Whittle.firstname.lastname@example.org).
Map showing the area classed as South Scotland:
TAKE ACTION: If you are not a constituent of one of the Committee members
If you do not live in any of the constituencies/regions represented by MSPs on the Committee, please contact your own MSP using this template email, and attaching this Parliamentary Briefing document.
Meeting with the Petitions Committee:
The petition has attracted a huge amount of support in Scotland and around the world. At the time of writing, 7,000 people have signed. The petition calls on the Scottish Government to invest in biomedical research into ME, patient care and ME education for health professionals.
Not all petitioners are called before the Parliament’s Petitions Committee, so the fact that we have been is very encouraging.
Who will attend from MEAction Scotland?
Attending the Petitions Committee on behalf of #MEAction Scotland will be: Emma Shorter (petition author), Professor Chris Ponting (recent recipient of the Scottish Government/Action for ME PhD funding) and Janet Sylvester (ME Action Scotland volunteer).
The meeting starts at 10 a.m., members of the public are now able to book tickets to view the committee meeting in the public gallery here: https://www.parliament.scot/visitandlearn/28754.aspx
The meeting will also be broadcast on the parliamentary TV channel and a transcript recorded.
What happens after the meeting?
Following the meeting the Petitions Committee may write to experts and stakeholders for further evidence. #MEAction Scotland is submitting a list of experts and stakeholders for Petitions Committee to contact. We will be given copies of all the stakeholder submissions and will have the opportunity to comment on them.
We need your help to keep the momentum going. Help us hire a full-time, on-the-ground #MEAction team member in the UK to support more work like this by donating to our UK crowdfunding campaign today.