On May 24th, 2018, we delivered this 580-page letter to Francis Collins, with over 7,000 signatures, photos, and personal comments.
We are demanding urgent action to increase funding for research, find a diagnostic test, support clinical trials, and develop treatments, and a meeting to discuss all this with NIH Director Francis Collins.
We also sent this video plea to Francis Collins, demanding answers. (Warning: This video is hard, like so much of the work we do. It’s emotional- and it is why we sent it to Francis Collins along with everything else. He has to see it. He has to listen.)
Many of you all over the world sent us a plea, Whitney’s Plea, brought to us by the fearless family of Whitney Dafoe. Whitney has been severely ill with ME for far too long, and like millions of other patients worldwide, Whitney deserves to come back to his life.
See the Full PDF sent to Francis Collins Here.
We are writing this article to share some exciting news! On Tuesday, September 26, ME advocates delivered copies of the book, The Puzzle Solver, by Tracie White with Ronald W. Davis, PhD, along with information about ME and Long Covid to Senators on the Hill. The books were donated by an individual living with severe ME/CFS in an effort to raise