On May 24th, 2018, we delivered this 580-page LETTER to Francis Collins, with over 7,000 signatures, photos, and personal comments.
We are demanding: A Diagnostic Test, Clinical Trials, and Treatments
We asked Francis Collins to meet with us, and we need answers soon.
We also sent this video plea to Francis Collins, demanding answers. (Warning: This video is hard, like so much of the work we do. It’s emotional- and it is why we sent it to Francis Collins along with everything else. He has to see it. He has to listen.)
Many of you all over the world sent us a plea, Whitney’s Plea, brought to us by the fearless family of Whitney Dafoe. Whitney has been severely ill with ME for far too long, and like millions of other patients worldwide, Whitney deserves to come back to his life.