NIH Must Not Overlook Evidence of Exercise Harm
March 22, 2023
4 Comments
Long COVID Exercise study must address safety, efficacy concerns.
Category: NIH
MEAction questions Long COVID exercise study’s safety, efficacy
March 6, 2023
1 Comment
Calls for immediate public release of RECOVER’s clinical trial design
NIH Extends Funding for ME/CFS Research Centers
September 7, 2022
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The National Institutes of Health (NIH) has taken steps to fix a “funding gap” in the timing of research awards for the ME/CFS Collaborative Research Centers (CRC) and the Data Management and Coordinating Center (DMCC). The currently-funded research centers which apply, and are approved, for another 5-year term will no longer face a 7-month funding
Research Update: The NIH Intramural ME/CFS Study
May 4, 2022
12 Comments
National Institutes of Health researchers who began what may be the deepest biological investigation ever of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are writing up their findings and plan to circulate a draft among their large team of scientists and physicians for feedback soon. “The study will help patients and should move the field forward in
NIH Comes up Short Once Again
February 17, 2022
7 Comments
No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has announced their intent to extend the ME/CFS Collaborative Research Center (CRC) program, first launched in 2017, beyond its initial 5-year lifetime. They have issued a $7.1M annual funding opportunity for the ME/CFS CRCs, and another $500K
NIH Long COVID research lacks clear plan to identify and track ME/CFS
January 14, 2022
2 Comments
MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular importance because a sizable fraction
#MEAction’s work in the Forest of Federal Agencies
November 13, 2021
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Hey folks, it’s me Ben. During this week’s #MEAction Giving Adventure we moved through the Forest of Federal Agencies as we surpassed our first fundraising level of US$15,000/UK￡11,178. While this fundraising adventure is all about putting the FUN in Fundraising, the work #MEAction has done within US Federal Agencies has been imperative to improving the
Is NIH blowing another opportunity to advance ME/CFS research?
October 21, 2021
3 Comments
Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH ME/CFS research opportunity being missed
NICE announces roundtable event to ensure implementation of ME/CFS guideline
August 27, 2021
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NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine
Sign Our Petition: Publish the NICE ME/CFS Guideline Now.
August 19, 2021
3 Comments
We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. Sign the petition On 18th August 2021, NICE were due to publish their newly developed ME/CFS guideline. It would have transformed the care people with ME receive in the UK and abroad. But