Action Alert: Ask Francis Collins Anything this Friday at 2pm EST

 
The National Human Genome Research Institute (NHGRI) will launch the National DNA Day Reddit “Ask Me Anything” (AMA) Series on Friday, April 20 at 2pm EST. Genomics experts will answer questions at the Reddit Science community forum, “/r/Science“. A Reddit AMA is an opportunity to ask interesting individuals questions about anything and everything.
This AMA will focus on Dr. Collins’ experiences during the Human Genome Project and how he envisions the future of precision medicine.
If you are unfamiliar with Reddit AMAs, read through this helpful overview. In the past, Reddit AMAs have been used by high-profile individuals such as Snoop Dogg, Jerry Seinfeld, and Barrack Obama.
The time to mobilize is now. Let’s flood Francis Collins with hard-hitting questions asking him about why he hasn’t done enough to help people with Myalgic Encephalomyelitis. Remember: AMAs are public and the purpose is for everyone to see both the questions and answers. This is why it is crucial to make sure we frame our questions correctly to educate the public that may not be familiar with ME. People from all walks of life will be participating, so in many ways, it may be more impactful to consider your audience rather than focusing on eliciting a polished response from Francis Collins.
Here are some examples:
“You drastically underfund a number of complex, chronic illnesses including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), POTS, Ehler’s Danlos Syndrome, etc. even though they devastate millions of Americans. Why is that?”
“There are 1-2.5 millions Americans who are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and 75-85% are unable to work while 25% are homebound or bedbound. What are you doing to help these Americans get back on their feet?”
“Because there is no cure, not even treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), an estimated $17-24 billions dollars are wasted in medical expenses and lost productivity due to patients’ inability to work. When will you end the neglect?”
“How do you envision the future of precision medicine for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), when up to 2.5 million Americans have it and continue to be ignored?”

Facebook
Twitter
WhatsApp
Email

1 thought on “Action Alert: Ask Francis Collins Anything this Friday at 2pm EST”

  1. What we need more than anything is to ban the words “chronic fatigue” I do not have chronic fatigue but I do have life limiting, soul destroying, life changing Myalgic encephalomyilitus (or however it’s spelt 🙄🙄)

Comments are closed.

Latest News

reddish rectangle image with different color stripes of red coming out at a diagonal from the center. In the center is the TeachMETreatME logo. The words celebrating an impactful campaign in white font underneath the logo.

#TeachMETreatME: Celebrating An Impactful Campaign

We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several

Read More »

#MillionsMissing Week is Here: #TeachMETreatME in Action!

We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME).  Throughout the spring, summer and fall, #MEAction teams are hosting 13 medical education events to encourage medical providers to

Read More »

#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024

We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME.  We intimately know the

Read More »
Scroll to Top