Forgotten Plague, a documentary that a journalist at The Huffington Post called “a must-see documentary” is now available through ordering a DVD or streaming through Amazon Prime. Much of the documentary’s quest is to educate people on ME/CFS, especially those in the medical and health fields. Getting the film in front of those who need it has to be a grassroots movement: we must hold screenings all over the world.
To get started , the Forgotten Plague website has several tips to help make your screening a success. Most importantly, this is not something you want to take on yourself. This is an event where tasks are best divided among several people, each of whom can reach anywhere to 40-60 people.
First, understand that the Blue Ribbon Foundation, a small 501(c)3 non-profit, strives to make a big international impact in educating the medical community. To do this, they need funding in the form of licensing fees to cover the costs in providing the services to raise the profile of ME/CFS. The Blue Ribbon Foundation of course will assist with keeping licensing fees as low as possible, and will also consider donations in lieu of paying the screening fee, since the documentary is available on DVD, Amazon Prime, and iTunes.
Learn more about this information through Tugg HERE. Here’s a cool little infographic on how Tugg works, and detailed instructions on how to set up an account.
Once that’s all squared away, find a venue that holds at least 100 people, and preferably has a projector and screen already set up. Pick a “cool” venue. If your screening is at a place people see as “special” that will definitely help drive attendance up and make it an exciting event to go to. Find a speaker within the community who might be able to do a Q & A afterwards.
After this, promote, promote! List the event in the local paper, hang fliers, start a page through the website eventbrite.com. Ticket sales cover not only the cost of the screening, but raise money for a charity of your choice. All of this can be set up in your Tugg account through the Fundraising Features section of the registration form.
Find some more detailed tips for holding a screening HERE.
Contact the Blue Ribbon Foundation board members through the Forgotten Plague website or email the team at forgottenplague [at] gmail [dot] com for further information and help to make your screening a success!
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the