The Invest in ME conference in London on Friday, 3 June is the first of three major ME/CFS conferences this year and there are indications that patients may be able to access live updates or recorded presentations from all three.
Some audience members attending the Invest in ME conference are expected to report live on Twitter. Invest in ME’s DVDs of the conference presentations, edited to protect embargoed research findings, are now available for pre-order.
The conference programme includes Professor Ron Davis of Stanford University, Dr. Vicky Whittemore of the US National Institutes for Health (NIH), and Professor Mady Hornig of Columbia University.
A partial programme for the September conference of the UK CFS/ME Research Collaborative (CMRC) in Newcastle has just been released. Speakers include the University of Bristol’s Professor George Davey Smith, who is the leader of the planned “Grand Challenge” project which, if funded, will be the world’s biggest biomedical ME/CFS research project. Dr. Zaher Nahle, of the US Solve ME/CFS Initiative, will speak on the group’s biobank and other research programmes.
This will be the third annual conference of the CMRC. Action for ME hope to livestream all of the first day, which patients may attend, and some of the second day. Some Twitter coverage is also expected.
The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) have not yet announced the programme for their October conference in Florida but Dr. Walter Koroshetz of the National Institutes for Health and Dr Øystein Fluge of Haukeland Hospital, Norway, have been confirmed as speakers.
Patients may attend the conference. Attendees at the previous conference in 2014 reported live via Twitter. The organization’s ability to livestream and record presentations depends on funding, but some recording has been possible in previous years.
Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion
There were significant concerns about the recommendation of a physical activity programme in the draft ME/CFS guideline, even with the caveats attached. The recommendation that a physical activity programme should be considered if patients would ‘like’ to start one, was felt to imply that there is a choice or a desire involved, rather than increased physical activity being impossible for many.