2016 ME/CFS conference season opens

Share on facebook
Share on twitter
Share on email

The Invest in ME conference in London on Friday, 3 June is the first of three major ME/CFS conferences this year and there are indications that patients may be able to access live updates or recorded presentations from all three.
Some audience members attending the Invest in ME conference are expected to report live on Twitter. Invest in ME’s DVDs of the conference presentations, edited to protect embargoed research findings, are now available for pre-order.
The conference programme includes Professor Ron Davis of Stanford University, Dr. Vicky Whittemore of the US National Institutes for Health (NIH), and Professor Mady Hornig of Columbia University.
A partial programme for the September conference of the UK CFS/ME Research Collaborative (CMRC) in Newcastle has just been released. Speakers include the University of Bristol’s Professor George Davey Smith, who is the leader of the planned “Grand Challenge” project which, if funded, will be the world’s biggest biomedical ME/CFS research project. Dr. Zaher Nahle, of the US Solve ME/CFS Initiative, will speak on the group’s biobank and other research programmes.
This will be the third annual conference of the CMRC. Action for ME hope to livestream all of the first day, which patients may attend, and some of the second day. Some Twitter coverage is also expected.
The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) have not yet announced the programme for their October conference in Florida but Dr. Walter Koroshetz of the National Institutes for Health and Dr Øystein Fluge of Haukeland Hospital, Norway, have been confirmed as speakers.
Patients may attend the conference. Attendees at the previous conference in 2014 reported live via Twitter. The organization’s ability to livestream and record presentations depends on funding, but some recording has been possible in previous years.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top