Support Tanya's life-saving fundraiser

Tanya is a remarkable young woman in desperate need of life-saving financial support. She lives in Adelaide, South Australia.
In her own words:
“My name is Tanya and I have been confined to a hospital bed now for most of the last 27 years as a result of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis and Crohn’s disease. I am unable to walk or stand and I haven’t been able to eat normal food for most of that time, over the last 8 years relying totally on a hospital-grade manufactured nutrition, called Vital HN. Taken by mouth, it has has kept me alive.
“Towards the end of last year I received devastating news from the pharmaceutical company that they had stopped making that formula. I am now in a desperate situation where I have only 4 weeks supply of Vital HN left, and several attempts made so far with the help of my dietician have not yet resulted in a successful replacement. Every formula I’ve tried has triggered a bad flare of intestinal pain.
“I am seeking to raise an amount of $20,000 to help me fund the search for a nutrition replacement to keep myself alive and for dietician and medical specialist expenses. I also need to pursue further tests and treatments that I have not been able to as I have no funds for them.
“Please help raise funds to help me move forward, in the hope that I can start to overcome some of the effects of my serious illnesses.”
Please visit Tanya’s fundraising site and share widely.

Facebook
Twitter
WhatsApp
Email

Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top