Tanya is a remarkable young woman in desperate need of life-saving financial support. She lives in Adelaide, South Australia.
In her own words:
“My name is Tanya and I have been confined to a hospital bed now for most of the last 27 years as a result of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis and Crohn’s disease. I am unable to walk or stand and I haven’t been able to eat normal food for most of that time, over the last 8 years relying totally on a hospital-grade manufactured nutrition, called Vital HN. Taken by mouth, it has has kept me alive.
“Towards the end of last year I received devastating news from the pharmaceutical company that they had stopped making that formula. I am now in a desperate situation where I have only 4 weeks supply of Vital HN left, and several attempts made so far with the help of my dietician have not yet resulted in a successful replacement. Every formula I’ve tried has triggered a bad flare of intestinal pain.
“I am seeking to raise an amount of $20,000 to help me fund the search for a nutrition replacement to keep myself alive and for dietician and medical specialist expenses. I also need to pursue further tests and treatments that I have not been able to as I have no funds for them.
“Please help raise funds to help me move forward, in the hope that I can start to overcome some of the effects of my serious illnesses.”
Please visit Tanya’s fundraising site and share widely.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the