Fund the SMCI Defeat ME/CFS Research Plan

Share on facebook
Share on twitter
Share on email

Help the Solve ME/CFS Initiative Defeat ME/CFS

Transforming Data into Solutions

Ambitious and groundbreaking, the Defeat ME/CFS Research Plan begins with the creation of a comprehensive “big data” database of medical and scientific information. Using bioinformatics for systematic integration and analysis, the Solve ME/CFS Initiative aims to transform ME/CFS from a medically unexplained syndrome to a diagnosable and treatable disease.
Through active recruitment, we will expand our well established SolveCFS Biobank, engaging a community of thousands to participate in research and contribute their disease experience information and biological samples.
Working with the preeminent scientists and using proven technology, we will generate molecular data about how genes, viral exposure, immune response and other factors contribute to ME/CFS and its subtypes.
The SolveCFS Information Commons will collect, integrate and analyze experiential and health information from patients along with their molecular data to define ME/CFS and its subtypes.

Plan Outcomes

  • DEFINE DISEASE SUBTYPES providing patients with deeper insights into their own experience and effective targeted treatments.
  • Establish commonly accepted UNDERSTANDING among medical professionals, researchers and the greater public of the LEGITIMACY of ME/CFS.
  • Create an enduring INFORMATION COMMONS, a knowledge network and ongoing tool for qualified researchers with an interest in contributing to the ME/CFS field.
  •  Develop committed partnerships with patients and pharmaceutical companies for clinical trials for DIAGNOSTIC and DRUG DEVELOPMENT.
  • Create infrastructure to drive objective DIAGNOSIS and TARGETED TREATMENTS as part of the FDA approval process.

Hope for a Brighter Future

As all patients with ME/CFS know, this is an extremely complex disease that is poorly understood by medical science. To date, much of the research conducted has been small scale and targeted to singular aspects of the disease. Defeat ME/CFS is a comprehensive plan to master the complexity of ME/CFS and render meaningful results, bringing us closer to a cure.
There is no doubt this research is necessary. It is also clear that this important undertaking is an expensive proposition. Unfortunately, unlike most other serious illnesses, ME/CFS does not yet receive substantial research funding from our federal government. Until that changes, we must rely on the continued generous support of patients, family members and friends. When you support the Solve ME/CFS Initiative, you stand united with thousands of like-minded people who understand the devastation of this disease.

*Donations are tax-deductible in the United States.

Share on facebook
Share on twitter
Share on whatsapp
Share on google
Share on email

1 thought on “Fund the SMCI Defeat ME/CFS Research Plan”

  1. I have been diagnosed with CFS and would be happy to share my personal disease experience information. Supplying biological samples would be problematic as I live in Australia.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.


Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Scroll to Top