Life with M.E. – Short Film Fundraiser

Life With M.E. – Facing Discrimination and Neglect from the Medical Community

Every day, thousands of people living with the condition known as Myalgic Encephalomyelitis or M.E. must face a devastatingly cruel existence. But where other conditions legitimized by the NHS in the UK have treatment to help manage, M.E. barely has any available, leaving well over 250,000 people without medical assistance. Trips to the doctor often result in overwhelming discrimination and neglect, where patients are frequently told that their condition is “all in their head” or “does not have any possible treatments”; two highly damaging lies. Some are even laughed at and openly mocked.
But all this must and will change. As part of its campaign for expansion of funding and treatment in the NHS to be made readily available to those living with M.E., Change For M.E. Change For Us is embarking on a short film project about discrimination and neglect in the medical sphere, asking people in the midst of it what it really feels like to have no hope and no help from those whose role is to do the exact opposite.
While we have our volunteers who are raring to go, Change For M.E. Change For Us is an independently run campaign with no outside funding. As such, we are seeking partnerships with those who truly care about change and health reform to help finance this small, but historic venture, bettering the lives of hundreds of thousands with this insidious condition. Please share this exciting movement.

For more information on Change for ME Change for Us, check out their Twitter and Facebook pages.

Fast Facts:

  • Change for ME Change for Us wants to raise £3500 to create a short film titled “Life with ME – Facing Discrimination and Neglect from the Medical Community”
  • Sponsor packages start at just £3.
  • Change for ME Change for Us is run by L.A. Cooper, an ME patient living in the UK.
  • Money raised will be used to hire an independent film and production company.
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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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