Is your senator a member of the Health, Education, Labor and Pensions (HELP) Committee?
Do you have friends or family living in the following states?
SIGN AND SHARE YOUR STATE PETITION
ALASKA * COLORADO * CONNECTICUT * GEORGIA * ILLINOIS * KANSAS * KENTUCKY * MAINE * MARYLAND * MASSACHUSETTS * MINNESOTA * LOUISIANA * NORTH CAROLINA * PENNYSLVANIA * RHODE ISLAND * SOUTH CAROLINA * TENNESSEE * UTAH * VERMONT * WASHINGTON * WISCONSIN * WYOMING
These states are a crucial part of our strategy to increase NIH (National Institutes of Health) funding for ME (Myalgic Encephalomyelitis). Please help us share the petition in these battleground states!
More about ME:
– Myalgic encephalomyelitis (ME) is a debilitating, often disabling, illness recognized as a neurological disorder by the World Health Organization since 1969.
– After an outbreak in Nevada in the 1980s, the CDC coined the term “Chronic Fatigue Syndrome.”
– There are no FDA-approved treatments and no diagnostic tools for ME.
– Between 836,000 and 2.5 million U.S. residents are afflicted with ME, with 84 to 91 percent not yet diagnosed. True numbers are highly underreported
– ME-related medical expenses and lost productivity cost the U.S. up to $24 billion annually.
– In research funding, ME receives less money for research than hay fever, and ranks far below similarly disabling illnesses:
– ME: About $2 per patient per year in NIH funding ($5 million in FY2015)
– Multiple sclerosis: About $250 per patient ($103 million in FY2015)
– HIV/AIDS: About $2500 per patient ($3 billion in FY2015)
– Patients with ME score more poorly on quality of life surveys than patients with multiple sclerosis, stroke, diabetes, renal failure, lung disease, heart failure and various cancers.
– At least one quarter of ME patients become housebound or bedbound, often for years. Many become unemployed.