Category: How-to guides

#MEAction’s Guide to Weathering the Holidays

Note: if you prefer to download this list as a pdf you can download it by clicking here. Make a list of whatever you can do in advance and a schedule for completing your tasks with plenty of wiggle-room. The holidays are often jam-packed with tasks.  Sit down nowish and make a list of everything

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Host a Postcards to Doctors party this holiday season!

Host a Postcards to Doctors party this holiday season! And announcing: #MEAction’s first Pinterest boards! Together, the #MEAction community has made the Postcards to Doctors initiative an incredible success: there have been approximately 5,500 requests for postcards to doctors across 43 states! We are so thankful to see people across the country step up to

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UK General Election Guide Now Available

The UK is set to go to the polls on 12 December 2019. #MEAction UK has prepared a guide ahead of the General Election with information on how to register for voting, different ways of voting (postal, proxy, etc), information about candidates and tips on raising awareness about myalgic encephalomyelitis (ME) with candidates. Make your

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Q&A with #MillionsMissing UK Organisers

On Thursday 18th April, #MEAction UK held a conference call with organisers of #MillionsMissing event past and present from across the UK. There are already events planned for 2019 in all 12 UK regions, with over 25 events in the UK Claire from Southampton, Janet from Edinburgh, Carolyn from Sheffield and Denise from London were

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Meet with your MP about ME – Our Toolkit shows you how!

Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether you are a person with ME, their carer, friend, family member or ally, we are

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The Power of the Shoe

    Shoes have been a powerful, unifying symbol for #MillionsMissing since the first global protest in 2016. Demonstrations across the world have displayed rows of shoes to represent what people are missing from their lives due to myalgic encephalomyelitis. The haunting image of rows of shoes symbolizing the effect of this disease on people’s

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Activism 101: Educate Medical Providers about ME

Most doctors, nurses and other healthcare providers belong to a medical association in order to connect to a community of their peers. These medical associations typically send out regular magazines, newsletters and emails about the latest news and topics of interest to the medical field. A great way to begin to educate an entire community

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What ME Activists Can Learn from the AIDS Crisis

I read “How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS” by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an amazing story but it is

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UNREST: Best Practices for Hosting a Community Screening

This guide will provide you with ideas for hosting your own impactful screening of Unrest that will be well-attended, well-publicized and garner support from important institutions in your community for Myalgic Encephalomyelitis (ME).   Community screenings of Unrest have taken place all over the globe. While all successful events can look differently, below is an

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Hosting a Screening of Unrest? Learn How to Talk to the Press

If you are hosting a screening of Unrest in your community, you will want to reach out to your local press about covering the screening. Below are some training resources to help you prepare to speak to the media. These tools were developed by #MEAction for the #MillionsMissing Day of Action in Sept. 2017 in

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