UPDATE: OMF's END ME/CFS Severely Ill Big Data study nearly 1/3 to target!

We have our next update on The Open Medicine Foundation’s END ME/CFS’s Big Data study of severely ill patients. The sum raised so far is an amazing $103,840, from 235 donations! The donations are coming from all over the world – the UK, US, Ireland, Australia, Germany, New Zealand, Finland and Slovakia. Be the first in your country! We’ve set an initial, interim target to get the study underway immediately: 15 patients at a cost of $25,000 each, for a highly achievable goal of $375,000. So join in and tell everyone you know about the study!
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You can find more information about the study here:
Q&A With the OMF Severely Ill Big Data Study
The ME/CFS Crowdfunding Campaign Facebook Page

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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