We have our next update on The Open Medicine Foundation’s END ME/CFS’s Big Data study of severely ill patients. The sum raised so far is an amazing $103,840, from 235 donations! The donations are coming from all over the world – the UK, US, Ireland, Australia, Germany, New Zealand, Finland and Slovakia. Be the first in your country! We’ve set an initial, interim target to get the study underway immediately: 15 patients at a cost of $25,000 each, for a highly achievable goal of $375,000. So join in and tell everyone you know about the study!
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After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline on ME/CFS’ with representatives from