Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually
October 7, 2022
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Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
Category: United States
New Diagnostic Codes for ME/CFS in the US ICD-10-CM
October 6, 2022
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Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
#MillionsMissing 2022: Activism From Home Was Beyond Impressive
September 30, 2022
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There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled. And we want to take a moment to acknowledge all of the amazing activism
Tell HHS about your experience of healthcare discrimination
September 29, 2022
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People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice. The deadline to submit a
#MillionsMissing Press Hits are Rolling In!
September 20, 2022
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The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House. One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic
NIH Extends Funding for ME/CFS Research Centers
September 7, 2022
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The National Institutes of Health (NIH) has taken steps to fix a “funding gap” in the timing of research awards for the ME/CFS Collaborative Research Centers (CRC) and the Data Management and Coordinating Center (DMCC). The currently-funded research centers which apply, and are approved, for another 5-year term will no longer face a 7-month funding
Protecting the Most Vulnerable: Complexities of Vaccines and Chronic Illness
September 1, 2022
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It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are reporting adverse effects from getting vaccines and boosters from all manufacturers. There are also rare reports of people without pre-existing conditions developing Long COVID and ME/CFS symptoms after getting
How Dept. of Labor can better track disability from chronic illness
August 27, 2022
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Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues. We provided feedback on ways to improve questions on
Dept. of Labor hosts dialogue on Long COVID in the workplace
July 22, 2022
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The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to people with Long COVID, #MEAction
New #MEAction Volunteer Survey
July 15, 2022
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#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The survey consists of 12 questions