United States Archives

CDC – Public Health Promotion of Chronic Fatigue Syndrome

August 3, 2015 No Comments

The CDC wants information from businesses about producing public radio/audio recordings to increase ME/CFS awareness
Deadline: Aug 05, 2015 4:00 pm Eastern
Objectives:
The goal of this work is to increase awareness of CFS through the use of public radio/audio recording. The specific objectives are to 1) produce radio/audio recording, 2) produce segments that are broadcast on NPR’s Morning Edition and on the NPR website; and 3) increase awareness of CFS and further facilitate the support of loved ones and society as a whole to improve the quality of life for patients with CFS.

Comment on the US NIH Strategic Plan

July 29, 2015 No Comments

The US NIH requests public comments on their strategic plan The United States National Institutes of Health wants feedback from you on their proposed strategic plan for the next 5 years. Jennie Spotila at Occupy CFS explains why this is important: One of the major weakness of the plan is that it leaves all the

CFSAC Meeting Welcomes Public Comments

July 22, 2015 No Comments

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a public meeting on Tuesday, August 18, 2015, from 9:00 a.m. until 5:00 p.m., ET and Wednesday, August 19, 2015, from 9:00 a.m. until 5:00 p.m., ET. Public comment may be provided in person, by telephone, or in written form.

Live Webcast – Dr Lipkin and Dr Hornig take the #ChilliMEchallenge

June 17, 2015 No Comments

Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!

UPDATE: OMF's END ME/CFS Severely Ill Big Data study nearly 1/3 to target!

June 17, 2015 No Comments

We have our next update on END ME/CFS’s Big Data study of severely ill patients and the sum raised so far is an amazing $103,840, from 235 donations.

A Job for a Lone Congress Member – Speak Up for ME/CFS, a Forgotten Disease

June 4, 2015 No Comments

Contact your Congressional Delegation – Share Llewellyn King’s article and ask them to speak up for ME/CFS Please find your Congressional delegation by typing your zip code, then copy and paste the following text into the contact forms. [button_color url=”http://www.contactingthecongress.org” content=”Contact your Congressional Delegation” target=””] Attention: Legislative Assistant for Health Please read the following article

NIH Telebriefing: Advancing the Research on ME/CFS

June 3, 2015 No Comments

The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions from members of the media.

Occupy the US Department of Justice

May 29, 2015 No Comments

Groups of chronically disabled patients, victims of medical abuse, will be assembling for a peaceful but passionate protest on the steps of USDOJ, 950 Pennsylvania Avenue NW, Washington, DC 20530, from June 1 until July 4.

Take Action for Equal Funding at NIH

May 15, 2015 No Comments

Join hundreds of patients in emailing Secretary of Health Burwell and NIH Director Collins for Equal Funding for ME/CFS!

Help DePaul Researchers Learn About Post-Exertional Malaise

May 14, 2015 No Comments

We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.

Category: United States