Equip yourself to fight disinformation!

Share on facebook
Share on twitter
Share on email
Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been flooded with disinformation about COVID-19.

We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe.

According to numerous reports, much of this disinformation comes from organized campaigns by domestic groups or foreign governments. They rely on a mix of fake accounts, “bots,” computer automation, and algorithms to take highly emotive, knowingly untrue information and make it artificially “go viral.” The intent of these bad actors is to create confusion, seed distrust in medicine, science, and public health institutions, or heighten existing divisions in our communities.


We believe that chronic illness communities, including the ME community, may be especially at risk, perhaps even intentionally targeted, due to our high online engagement and interest in discussing medicine and science. We also have valid and longstanding grievances with the public health institutions that for so many decades have marginalized us and caused incalculable harm. These bad actors know this, and will seek to take advantage.

What they may not realize is that our community is one of the most scientifically-literate and scientifically-engaged communities on the internet. We have lived through dangerous pseudoscience like the PACE trial. We have been sold sham cures and false promises before. These bad experiences have helped make us more discerning. We value rigorous science because we know that ultimately, it is the only way to discover what causes ME and develop effective treatments.

So, thank you for helping us keep our community safe this May 12th, during #MillionsMissing and beyond. By taking great care with the information you amplify with a share, “like,” retweet, or comment, you can help us stand up for good science. 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on email
Email

1 thought on “Equip yourself to fight disinformation!”

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Press Jungle Featured Image

#MEAction Swinging Through The Press Jungle

Welcome to the jungle, the press jungle! It’s hot and noisy here, with news fresh off the press. Trying to get the attention of the media is not as impossible as legend had it! This is Adriane, and as your Press Scribe, I’m here to write our way through this next adventure and make sure

Read More »
Research Lagoon

#MEAction Swimming Through the Research Lagoon

Hi, everyone! It’s Jaime, the Director of Scientific & Medical Outreach at #MEAction. During this week’s #MEAction Giving Adventure we swam through the Research Lagoon as we surpassed our second fundraising level of US $20,000/UK£14,820. While our fundraising format this year is fun and lighthearted, the work #MEAction is doing to advance research and clinical

Read More »

Join over 1,000 people and vote for your ME/CFS research priorities

Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians in the UK are all asked to take part. The ME/CFS Priority Setting Partnership is particularly looking for more people from ethnic minorities, carers and health care professionals to take part. So far: Just 4% of respondents are

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top