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Register Now for ME/CFS Advocacy Week 2019!

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#MEAction and Solve ME/CFS Initiative (SMCI) are excited to announce a joint partnership for ME/CFS Advocacy Week & DC Lobby Day 2019!  The week of meetings with representatives, call-in actions and online events will take place from Monday, April 1 to Sunday, April 7th.

The keystone event, Lobby Day 2019, when hundreds of advocates storm Congressional Offices, will take place on Wednesday April 3rd. We are looking forward to people with myalgic encephalomyelitis (ME), caregivers and allies joining together to make our voices heard!

This year, we plan to take more meetings with elected officials than ever before. ME still has far too little federal funding and far too little is being done by our federal government to find treatment options that work. ME/CFS Advocacy Week & DC Lobby day are part of a robust joint advocacy strategy to call for increased federal action and improve the lives of people with ME. 

It’s clearer now more than ever that we need action from our elected officials. They must be held accountable for the millions of Americans that have ME, and they need to join our effort to discover a cure for ME.

We know that not everyone is, understandably, able to travel to advocacy week in person. There will be many ways to get involved and take action. Both organizations will host training workshops online and in-person on April 2nd. We will be informing you along the way and developing strategy and tools with volunteers and allies.

Register for Advocacy Week 

Register for Advocacy Week 2019

Learn more about Advocacy Week!

Join us for a Facebook Live FAQ Event on Wednesday, February 6th at 1pm PST!

For more information about Advocacy Week and hotel details, click here.

About #MEAction and SMCI

#MEAction is an international network of people with ME and allies fighting for health equality for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). We are building a grassroots movement to effect widespread change. 

Our mission is five-fold: mobilize the community to fight for equitable investment in research, clinical care and medical education. Educate doctors, nurses and health professionals about ME. Build community to create networks of support, friendship and empowerment. Inspire a new generation of researchers to enter the field. And, finally, to reach the general public to gain mass recognition about the crisis of ME.

SMCI is excited to bring their wealth of knowledge about planning ME/CFS Advocacy Week from the previous two years to our efforts in 2019. The Solve ME/CFS Initiative (SMCI) is a non-profit disease organization that works to accelerate the discovery of safe and effective treatments, strives for an aggressive expansion of funding for research that will lead to a cure and seeks to engage the entire ME/CFS community in research, advocacy, and patient support. SMCI is the foundational ME/CFS organization, steadily broadening strategic, collaborative relationships with patients, researchers, government officials and other ME organizations across the globe.

 

 

Categories: Advocacy, All News, Congress, Featured news, United States

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2 comments on “Register Now for ME/CFS Advocacy Week 2019!
  1. I the efforts you have put in this, appreciate it for all the great articles.

  2. bobbi says:

    Many of us who would want to come, cannot come. What can we do to support this? Can there be a BIG phone in for that day?
    Who should we call other than the reps we already visited the past years?

    Can I have that info to give out at the next MEAllies meeting Feb. 2 and we can post it for March also.
    Wonderful!!!

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