Australian Greens MP, Adam Bandt, formally tabled a petition for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in Parliament on Dec. 4th.
The Emerge Australia petition asks the National Disability Insurance Agency (NDIA) to collaborate with the ME/CFS community to develop appropriate guidelines for National Disability Insurance Scheme (NDIS) assessors, and for ME/CFS to be added to List B of permanent conditions for NDIS. Close to 1,4000 people signed the petition.
Adam also made time to meet with Emerge Australia to discuss the NDIS petition as well as other key priorities for Emerge: the need for increased biomedical research funding, updated Australian clinical guidelines and improved support services, as well as the need to reduce the stigma associated with the illness.
If you’d like to thank Adam for his ongoing support for the ME/CFS community, feel free to send him an email, which we know he and his staff read and appreciate: [email protected] Or, leave a comment on his Facebook page.
Up to 240,000 Australians are struggling with ME. It is a chronic, multi-system illness that has a devastating impact. An estimated 25% of people with ME are left bedbound, and 75% are unable to work. Many severely affected sufferers require complex care and disability support services.
Despite this, research is grossly underfunded and people living with ME are routinely rejected for financial support including the NDIS.
Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted