UK: MPs fight for a crucial parliamentary debate on ME

Share on facebook
Share on twitter
Share on email

Carol Monaghan MP presented her application for a debate on ME to the Backbench Business Committee on Tuesday October 30th supported by Nicky Morgan MP, Steve Pound MP and Kelvin Hopkins MP. The application was also supported by over 30 other MPs from across the political divide at a crucial time for people with ME in the UK. MPs hope that this substantive motion will lead to a House of Commons Main Chamber debate this autumn. We expect to hear whether or not the application was successful within a week – stay tuned!
Carol Monaghan MP called into question the independence of the NICE guideline review process with over 60% of appointees being supporters of Graded Exercise Therapy (GET). Another point highlighted by the presenting MPs is the plight of children. Children with ME suffer from debilitating physical symptoms and have the added burden of suspicion. Some families are subject to child protection orders as parents are suspected of causing harm to their children. The MPs called for an investigation into these cases, which Carol Monaghan labeled as sinister.
Nicky Morgan MP mentioned the powerful cross-party support for the last ME debate, how widely reported this issue was and how she had been contacted by people from around the world after the debate. A Main Chamber debate would also give people a voice against a very powerful medical community.
Kelvin Hopkins MP talked about his personal connection with ME and the failure of the medical profession to diagnose and treat. He reported Dr Ian Gibson, a former MP for Norwich and expert witness, was ‘incandescent’ about PACE and the terrible damage it has done.
Stephen Pound MP talked about the double disability of ME and it being invisible and denied. He called for intervention in the ‘remorseless rolling rockfall’ that is likely to crush so many constituents. He pointed to the unequal contest between patients and doctors and the deep concern of ME patients about current treatments. He said that ‘medics have got it wrong in the past’. ‘If we don’t get this right,’ he concluded, ‘the consequences, particularly for paediatric ME sufferers will be absolutely disastrous’.
Watch the MPs call for the debate on ME before the Backbench Business Committee:
.
This follows on from two successful Westminster Hall debates. Monaghan led the parliamentary debate on the PACE trial last February in which the Minister acknowledged a wider debate would be warranted. Subsequently, Carol Monaghan MP sponsored the Westminster Hall debate on 21st June 2018 along with support from MPs Carol Monaghan, Nicky Morgan, Stephen Pound, Alex Chalk, Ben Lake, Kerry McCarthy.
We need as many people as possible to contact their MPs and tell them how important it is that they support the debate and hear what the ME community has to say. You can use the Parliamentary Toolkit to arrange a meeting with your MP in 4 simple steps. We have also put together a social media toolkit with useful tips for online advocacy. Find it here!
[maxbutton id=”21″ url=”https://meaction.net/wp-content/uploads/2018/10/UK-Toolkit_-How-to-meet-with-your-MP.pdf” text=”Check the Toolkit” ]  
If your MP hasn’t yet signed Carol Monaghan’s EDM 1247 then you can ask them to sign it. Check if your MP has signed here.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on email
Email

3 thoughts on “UK: MPs fight for a crucial parliamentary debate on ME”

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Press Jungle Featured Image

#MEAction Swinging Through The Press Jungle

Welcome to the jungle, the press jungle! It’s hot and noisy here, with news fresh off the press. Trying to get the attention of the media is not as impossible as legend had it! This is Adriane, and as your Press Scribe, I’m here to write our way through this next adventure and make sure

Read More »
Research Lagoon

#MEAction Swimming Through the Research Lagoon

Hi, everyone! It’s Jaime, the Director of Scientific & Medical Outreach at #MEAction. During this week’s #MEAction Giving Adventure we swam through the Research Lagoon as we surpassed our second fundraising level of US $20,000/UK£14,820. While our fundraising format this year is fun and lighthearted, the work #MEAction is doing to advance research and clinical

Read More »

Join over 1,000 people and vote for your ME/CFS research priorities

Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians in the UK are all asked to take part. The ME/CFS Priority Setting Partnership is particularly looking for more people from ethnic minorities, carers and health care professionals to take part. So far: Just 4% of respondents are

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top