Do You Have MCAS? Fill Out this Survey.

If you have been diagnosed with mast cell activation syndrome (MCAS), please take a minute to fill out this anonymous survey. The Mastocytosis Society will use data from the survey in its presentations at a National Institutes of Health (NIH) workshop on MCAS in early September. This survey is only open until Saturday, August 25th at 10p.m. EDT / 7 p.m. PDT.
Some critical issues the survey hopes to assess are what percentage of people are living with a more severe form of MCAS than has been previously described in the literature, are severely food-restricted, and are experiencing difficulty accessing appropriate care.
All patients with a diagnosis of MCAS made by a physician are encouraged to take and submit the survey. In the situation where a patient may have been given more than one mast cell disease diagnosis, as long as one diagnosis is MCAS or hereditary alpha tryptasemia, they may still take this survey.
All patients affected by MCAS and/or hereditary alpha tryptasemia are encouraged to contribute to updated knowledge about their disease by taking this survey.  This survey is open to children, teens and adults affected by MCAS, with parents either answering for young children or assisting teens with completing the survey.
If you will require help taking the survey, e.g., because of vision problems, etc., please let us know at [email protected]
[maxbutton id=”19″ url=”https://mtsu.ca1.qualtrics.com/jfe/form/SV_3yK0JIVwgLwxHZH” text=”Fill Out the Survey” ]  
What is Mast Cell Activation Syndrome?
Mast cells, a type of blood cell, play an important role in the body’s immune system. They reside in all body tissues and form part of the body’s initial defence system. Mast cells react to foreign bodies and injury by releasing a variety of potent chemical mediators, such as histamine, when activated. In a healthy person these chemicals will act beneficially to protect and heal the body, but in a person with MCAS these same chemicals are inappropriately triggered and released and have a negative effect on the body. Amongst the triggers are a variety of different foods, exercise, chemicals, fragrances and stress. Many sufferers struggle to identify their triggers and continue to discover new triggers for many years after diagnosis.
 

Facebook
Twitter
WhatsApp
Email

Latest News

Image features newspappers folder up and stacked together vertically. There is a red box in the center that has the words, Why We Keep Telling the Story of ME to the Press in white and the #MEAction logo in the righhand corner of the box.

Why We Keep Telling the Story of ME to the Press

Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the

Read More »
the words " #MillionsMissing 2023: Scotland calls for healthcare education" appear in white on a red-muted background with the #MEAction Scotland UK logo in the bottom right hand corner.

#MillionsMissing 2023: Scotland calls for healthcare education

This year, #MEAction Scotland’s #MillionsMissing campaign focussed on raising awareness of the reality of living with ME and called for education and training for healthcare professionals to improve support for people with ME across Scotland. Ahead of ME Awareness week, we put out a call, alongside #MEAction UK, to ask members of the ME community

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top