Do You Have MCAS? Fill Out this Survey.

If you have been diagnosed with mast cell activation syndrome (MCAS), please take a minute to fill out this anonymous survey. The Mastocytosis Society will use data from the survey in its presentations at a National Institutes of Health (NIH) workshop on MCAS in early September. This survey is only open until Saturday, August 25th at 10p.m. EDT / 7 p.m. PDT.
Some critical issues the survey hopes to assess are what percentage of people are living with a more severe form of MCAS than has been previously described in the literature, are severely food-restricted, and are experiencing difficulty accessing appropriate care.
All patients with a diagnosis of MCAS made by a physician are encouraged to take and submit the survey. In the situation where a patient may have been given more than one mast cell disease diagnosis, as long as one diagnosis is MCAS or hereditary alpha tryptasemia, they may still take this survey.
All patients affected by MCAS and/or hereditary alpha tryptasemia are encouraged to contribute to updated knowledge about their disease by taking this survey.  This survey is open to children, teens and adults affected by MCAS, with parents either answering for young children or assisting teens with completing the survey.
If you will require help taking the survey, e.g., because of vision problems, etc., please let us know at [email protected].
[maxbutton id=”19″ url=”https://mtsu.ca1.qualtrics.com/jfe/form/SV_3yK0JIVwgLwxHZH” text=”Fill Out the Survey” ]  
What is Mast Cell Activation Syndrome?
Mast cells, a type of blood cell, play an important role in the body’s immune system. They reside in all body tissues and form part of the body’s initial defence system. Mast cells react to foreign bodies and injury by releasing a variety of potent chemical mediators, such as histamine, when activated. In a healthy person these chemicals will act beneficially to protect and heal the body, but in a person with MCAS these same chemicals are inappropriately triggered and released and have a negative effect on the body. Amongst the triggers are a variety of different foods, exercise, chemicals, fragrances and stress. Many sufferers struggle to identify their triggers and continue to discover new triggers for many years after diagnosis.
 

Facebook
Twitter
WhatsApp
Email

Latest News

Questions to Ask Prospective MPs About ME/CFS

In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people with ME and Long Covid. It can be a little daunting to be unprepared so here are some questions you might want

Read More »
red rectangle with the #MEAction Scotland logo on the left hand side and the words Impact Statement 2022-2023 on the right.

#MEAction Scotland publishes impact statement

#MEAction Scotland is pleased to publish our impact statement, which covers March 2022 to May 23. It reports on our work to campaign for effective support, create stronger advocates and raise awareness. As a small group of volunteers, it’s unfortunately not always possible to continually update on our activities as they happen, so the statement

Read More »
reddish rectangle image with different color stripes of red coming out at a diagonal from the center. In the center is the TeachMETreatME logo. The words celebrating an impactful campaign in white font underneath the logo.

#TeachMETreatME: Celebrating An Impactful Campaign

We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several

Read More »
Scroll to Top