Read a response from some of the subjects of Afflicted: “The Truth Behind Netflix’s ‘Afflicted.'”
We anxiously awaited the release of Netflix’s docuseries, “Afflicted,” on Aug. 10 and are appalled by the dismissive, psychosomatic lens through which the patients are ultimately portrayed.
The casting director had said that the “intention is to look at these experiences through a compassionate lens and give voice to those struggling for answers and acceptance.” We had hoped to see this reflected in the finished product. We are disappointed and outraged at the lens with which these illnesses were viewed.
First and foremost, we want to share our unwavering support and appreciation for Jamison Hill. It took enormous courage and self-sacrifice for him and all the other chronically ill subjects of the documentary to share their stories with us.
As for how to respond, we have no one answer. As always, the strength of our community lies in its diversity. #MEAction exists to help strengthen your voices and help facilitate your ideas.
We have collected some ideas seen in the community and added some options we feel might be helpful.
1. Instead of sharing Afflicted, share the voice of people with ME and/or other illnesses portrayed in #Afflicted.
– Share Jamison’s own words in this New York Times article. https://www.nytimes.com/…/modern-love-means-never-having-to…
– Recommend viewing Unrest which can be seen on Netflix as well as many other streaming platforms. https://www.unrest.film/watch/
– Read Julie Rehmeyer’s book https://www.julierehmeyer.com/throughtheshadowlands/
– Watch Forgotten Plague https://www.amazon.com/Forgotten-Plague-Ron-Da…/…/B01AT28FS2
– Share any other medium that has moved you that features the person’s own voice
2. Make your opinion clear on IMDB and other review formats.
3. Write to Netflix https://media.netflix.com/en/contact-us
4. Use caution when sharing Afflicted which might inadvertently lead to increased views.
We will continue to explore all options and update you as soon as possible. #pwME #MyalgicE #chronicillness
Below is the interview that #MEAction conducted with Jamison prior to the release of “Afflicted.” Jamison is the author of the popular blog dealing with issues around ME, Jamison Writes.