A Tribute to Mag Friel

Share on facebook
Share on twitter
Share on email

 
 

A tribute to Mag Friel
who had a great capacity for friendship

10 October 1953 – 31 December 2017

You can listen to an audio-recording of Marion’s tribute on Soundcloud
We never cooked a meal together, linked arms, kicked autumn leaves on Peckham’s streets; never walked along the Seine, crossed Brooklyn Bridge, took train, bus, boat wherever; never dipped toes into the freezing sea in January or any other month; never talked all night, never cried together, although we often felt we might; never heard each other laugh, though laugh we did, out loud, almost in unison.
At our best we made up stories, travelled North, South, East, West (to Ambridge too), sent messages from bedstead, sofa, blanket on the floor; shared desperate times, hers always so much worse than mine, and small delights, until the short supply of hope ran out and there was naught, zilch, nothing left for Mag but the brute force of M.E. in its severest form – fatigue that totally incapacitates and isolates, and leaves the sufferer with increasingly uncontainable symptoms and atrocious physical pain 24/7, in a room with curtains permanently closed.
For years Mag lived life on the point of a needle. She took her life on 31 December 2017.

* * *

Mag’s capacity for deep communion, care, and laughter in the midst of hardship was immense. She stayed in touch with friends through fantastically abbreviated text messages. Notes written on kitchen roll were precious. Even more so the occasional voice recording – words barely louder than a breath. Her inner liveliness, her fierce intelligence, her willpower, her curiosity and wit, shone through her arduous, yet often joyful utterances.

People who had never met Mag were moved by her generosity of spirit, her desire to be part of a community, to be of use.

She craved visits, but could seldom manage them. Even minutes spent in silence by her bedside left her depleted and worsened symptoms for weeks. What a fight it was to be alive! I don’t know how Mag endured. Her faith sustained her. In our local M.E. group she was known as a prayer warrior who would plead for you or a loved one. People who had never met her were moved by her generosity of spirit, her desire to be part of a community, to be of use. To her great distress Mag lost the ability to text, became unable to communicate with the outside world, although messages were still read out to her.
I know hardly anything of Mag’s life before she fell ill in 1993. We were witnesses to each other’s ‘now’. There are clues though: when I sent our shoes to the #MillionsMissing protest, Mag selected a pair of dainty black Velours stiletto heels with pointed toes. Imagine her staccato gait – upright and stable! Last year, while Cannes was in the news, she wrote: “May 1991 sailed to Cannes on my partner’s yacht, hoping to complete on 5 million film deal we’d worked on for 4 years. May 2017 achieved my goal of having bed sheet changed, first time in months. Heaven. Happy ME Awareness Day. Love and eternal hope for us all. xxxxxx”
Memories of who we were before M.E. seem almost fanciful when we need all our energy to make do. Mag’s fortitude was striking. Her life shrank to the very basics of survival, and still she rifled through day’s pockets for wee pleasures.
The lack of funding for biomedical research and the disparagement of the M.E.-community enraged her. She faced complacent institutions and their indifferent, even contemptuous representatives with unceasing anxiety, and was let down in countless ways. Two beloved long-term care-givers worked hard to balance the scale and tended to Mag’s needs with boundless empathy and precision. Their insight into M.E., learned on the job, does them proud. If only it were easily transferable. If only people wanted to know.

We have seen too many notices about M.E.-related deaths & suicides. These are not ‘tragic’ losses, they are shameful!

During Mag’s funeral service, attended by her carers and friends from the support group whose gatherings she had never been able to join, the depth of love for her was palpable. Only an elderly couple had known our friend in blooming health, neighbours since she had bought a battered house and set to doing it up, by herself. In the end she lived in a hospital bed in a darkened room on its ground floor, unable to tolerate a hug, or being washed, because she hurt so much.
And now let’s talk about rage. We have seen too many notices about M.E.-related deaths & suicides. These are not ‘tragic’ losses, they are shameful! To most of the world Mag (and thousands like her) – bed-bound, in constant pain, with a catalogue of spreading and ever more debilitating symptoms – do not exist. Mag had severe M.E. for 25 years! Imagine what could have been achieved if research had not been impeded by the ‘it’s all in your head’ brigade. Years, even decades of unmediated, unattended suffering, can drive a person to that last desperate step. It is appalling that these conditions persist. We need a radical change in attitudes and substantial funding for long overdue biomedical research, now!
I mourn the life Mag could have led. Missing her has only just begun.
@marjojo2004
 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

4 thoughts on “A Tribute to Mag Friel”

  1. Dear Worrior Marion, Thank you for so eloquently describing the quarter of a Century of extreme suffering with Myalgic Enchelomyalitis (M.E.) Mag Friel endured. The World needs to know of Mag’s countenance as a loving soul despite her own battle. And we urge for wider understanding and medical assistance. ✝️🕊

  2. Jackie O'Doherty

    I don’t know Mag but her story has impacted my life. Through my work as CNA/HHA I have met people in Meg’s situation and always wondered ‘what is really wrong’? After volunteering with NAMI for many years I now find myself determined to find an ME Support Group or Visitor Group in Colorado Springs where I can offer some volunteer hours. Peace be with Mag.

  3. A profoundly moving, haunting, and inspiring reflection tribute to Mag Friel by Marion. Listening to Marion’s impactful words, it is clear to me that each of us must take whatever actions we can so that we, the Millions Missing are not missing any more! Research is needed and we can support each other In demanding our due. I am ready to be there for you and hope you will be there for me. Peace-
    Susan

  4. Dear Susan, dear Jackie, dear Marcia. Thank you so much for your lovely words. Sorry for my tardy answer, felt physically and mentally exhausted and had to try and switch off for a little while. Your responses have touched and encouraged me. It is amazing to think that my writing can inspire someone to volunteer with an M.E. support group or similar. Always hoped my words could be beautiful and of use! All the best to you, and let’s get ready for ME Awareness Day! Mxx

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Choose your top ten ME/CFS research priorities – UK survey launched

Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted

Read More »

Statement from Forward-ME on NICE Roundtable

After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline on ME/CFS’ with representatives from

Read More »

Is NIH blowing another opportunity to advance ME/CFS research?

Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH ME/CFS research opportunity being missed

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top