Chronic Illness Foundation Launches in Pakistan – Call for Support

Hello, I’m Nevra Elis Ahmed. I’m currently working as a volunteer project manager, translator and regional representative for Pakistan. I’ve been suffering with ME/CFS since I was 6 and I am 22 now. I could only get diagnosed last year.
In the past, I have hosted and organised two screenings of Unrest to get the dialogue started with regards to ME/CFS in Pakistan. We had a wonderful response and gained allies within the media. Watch videos from the events below. 
Now I need help with launching our foundation’s Facebook page as well as revising our mission statement for our foundation. ME/CFS has stolen much from me and getting diagnosed quite late was a huge factor in my worsening. I could never continue my education or make it to university. I do not want it to steal more lives so I will be launching the “Neglected Chronic Illnesses Foundation” in Pakistan, which will focus on ME/CFS, MS, Lupus, Endometriois, Orthostatic Intolerance, and Polycystic Ovarian Syndrome.
We will provide patient care, resources and support as well as spread awareness for these diseases and set up collaborative projects between international and regional researchers so when the cure is found it doesn’t take ten years for it to reach Pakistan. Our headquarters will be in Pakistan but we will eventually branch out to other Asian and Middle Eastern countries.
I’d love to get more help on this project especially if you have any experience with social media projects or setting up a page.
Also, please connect to our #MEAction Pakistan Facebook Group.
Unrest Screenings in Karachi: 
 

Facebook
Twitter
WhatsApp
Email

1 thought on “Chronic Illness Foundation Launches in Pakistan – Call for Support”

Comments are closed.

Latest News

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Read More »

BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking BOLD ACTION is both a

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top