Volunteers on Radio Scotland

Listen to MEAction volunteers on Radio Scotland!
Available as an MP3 (7Mb) or stream via BBC iPlayer (starts at 36.23)
On 14th of February 2018, my mum (Janet) and I were on Radio Scotland to discuss #MEAction’s Millions Missing campaign in Scotland. The piece was instigated after the Millions Missing Time for Unrest event at the Scottish Parliament a couple of weeks ago.
As ME news seems to be moving excitingly fast at the moment, Radio Scotland invited on Carol Monaghan MP to talk about her Westminster debate on the PACE trial (if you haven’t asked your MP to attend please do so ). The PACE trial is the only piece of research the Scottish government, along with the Department of Work and Pensions, has funded into ME for 20 years, so it great to see a Scottish MP organise this debate. Carol Monaghan talked with real knowledge about the  PACE trial, the many problems it has caused patients and its influence both locally and internationally. Hopefully the Scottish MPs who support the debate will call on the Scottish Government to provide funding for ME research. Dr Vance Spence from ME Research UK talked about how public funding could be used effectively and made a strong recommendation for Government funding for a Centre of Excellence.
Unfortunately we missed the introductions due to difficulty connecting and it turned out that the presenter had not been briefed on the campaign, so we were just asked to tell our “story” when it would have been nice to keep the pressure up on the Scottish Parliament! However, it was wonderful to have a piece which focussed on the problems of PACE rather than defending it, and an MP who has taken the time to learn about the problems and take action. We felt the segment was too short, and that the many problems with the PACE trial and CBT/GET are worth a longer segment. Something that an investigative programme could really sink it’s teeth into.
 

Facebook
Twitter
WhatsApp
Email

1 thought on “Volunteers on Radio Scotland”

  1. You did brilliantly, Emma, you were very articulate in spite of your obvious fatigue. Yes, so much more could be said and half an hour just wasn’t enough. But it’s probably the best radio interview on ME that I’ve heard yet. Thanks to Vance Spence, who was suitably incensed, and Carol Monaghan too. I know it’s been pointed out to her on various fora that the vast majority of clinics in the UK advocate GET and CBT and I for one am grateful there’s *only* Astley Ainslie in Edinburgh available in the whole of Scotland.

Comments are closed.

Latest News

Facets of ME: Temperature Dysregulation

Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.

Read More »

Dept. of Labor Updates Information on ME/CFS for Workers, Employers

The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting

Read More »

#MillionsMissing: 7 Days in Self Portraits with ME/CFS

After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below. Click on any of the

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top