Science for ME is a major new ME/CFS internet forum with a focus on community, support, advocacy – and, at the heart of it all, science.
Patients with any chronic disease are at risk from quack therapies and poor-quality medical trials, but this applies especially to ME/CFS. Patients and carers therefore founded Science for ME as a place where open, scientific discussion of treatments, research, and theories would take centre stage, for the benefit of patients and scientists alike.
The forum is moderated to make it a safe and supportive space. Discussions range from friendly conversation, to matters of emotional support, to the latest advocacy action, to the practicalities of living with ME/CFS, to questions about treatment, and to the most recently published science.
We hope that scientists will join the forum as well as patients, and we are working on a programme of online Q&A sessions with researchers, to build on the success of our first such event.
The forum opened last October and has already attracted over 500 members, with over 25,000 messages on more than 1,400 threads.
Science for ME has a welcome section to help new members, which includes a statement of our core purpose and values, our rules and an etiquette guide. New members are very welcome, and we look forward to meeting you on the forum.
It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and GPs in the UK has omitted advice that health professionals can and should apply their clinical judgement when placing people in group 6. Vaccination of people with underlying health conditions that put them at risk of