1) PUT YOUR SHOES OUT
Put your shoes out on your front step, at the end of your driveway, or in a public place to symbolize a patient, a friend or a loved one missing because of ME; consider placing them with a sign to tell the story of just what that person – and the world – are missing.
Post to social media using the hashtags #MillionsMissing and #putoutyourshoes. We want to start a tradition that links these shoes with this day of action, the first of many.
Let these shoes help start a conversation with your neighbors, with passersby, with your friends on social media.
I am missing sufficient health to leave my bed and wear shoes for 22 years
I miss wading in the rainforest in these
2) SEND US A PHOTO OF WHAT YOU ARE MISSING
This incredible Instagram account shows the Millions Missing from their lives because of ME/CFS. Patients can send their photos and a short caption of their photo to [email protected]. Our hardworking Instagram volunteer will turn the image into an animated gif.
Follow us on Instagram and share the MillionsMissing stories!
Note: do keep sending images, but be aware that our volunteer may not get to yours today. If your gif has already been created, share widely!
3) TWIBBON YOUR SOCIAL MEDIA
4) WRITE YOUR LOCAL MEDIA
Tweet, call, or write to your local television, radio station, or newspaper. Write a letter to the editor. Let your local media know about the #MillionsMissing and why this untold story is so important. Tell them why you are participating in the protest, in person or virtually.
Find inspiration in one of these local press releases and fact sheets. Follow news coverage of #MillionsMissing here.
5) SEND THE FORGOTTEN PLAGUE TO YOUR REPRESENTATIVES
In the U.S., you can send the Forgotten Plague Congressional Pack to your representatives. The Congressional Pack includes a special version of the documentary A Forgotten Plague. Order a Congressional Pack for your district from the Blue Ribbon Foundation here.
Follow the #Millionsmissing hashtag on Twitter and Facebook, and follow and share the MillionsMissing Instagram. Share and retweet others’ content and post your own.
We have worked so hard to get here — now it’s the home stretch. Ensure that your protest makes a resounding noise in the halls of government by raising your voices online, posting your own images, and using social media to promote the posts and tweets of others.
Thank you so much!
We couldn’t have done any of this without the help of hundreds of volunteers: the shoe-senders, letter-to-the-editor writers, community wranglers, those who donated time and those who donated funding. Thanks to those hundreds for helping to show the world all the #MillionsMissing.
ME Action Team