Online TV show to discuss ME/CFS Centers of Excellence

Dr Kenneth J. Friedman will discuss the CFS Advisory Committee’s (CFSAC’s) upcoming proposal for ME/CFS Centers of Excellence and will explain what patients can do to make such centers a reality, in an online TV panel show on May 12.
The one-hour show, which covers ME/CFS and Lyme Disease, will be broadcast on Channel 17 at 7 pm (Eastern Daylight Time) from the Shelburne, Vermont Town Hall.
Dr Friedman, a retired Associate Professor of Pharmacology and Physiology at the New Jersey Medical School, is well known for his work in ME/CFS. He heads the CFSAC team who are developing the Centers of Excellence proposal, which will be presented at their meeting on 17 and 18 May.
The panel also includes David Maughan, Professor Emeritus of Molecular Physiology and Biophysics at the University of Vermont College of Medicine, who will present his explanation of why ME/CFS patients feel so fatigued.
Two family physicians will also appear on the panel. Dr. Terry Naumann will address how patients can get the most out of their doctor’s visit, and Dr. Jeff Wulfman will discuss some of the common factors, such as increased inflammation and microbial influences, that he believes underlie complex chronic illnesses such as ME/CFS and Lyme.
The fifth panel member is Senator David Zuckerman, currently a candidate for Lieutenant Governor of Vermont. He will talk about his role as lead sponsor of a bill that would allow Vermont doctors more flexibility in treating Lyme disease.
Rik Carlson of the Vermont CFIDS Association will host the show, which can be watched live. Further details about the event and the speakers can be found here. After the show, a bound copy of the presentations can be ordered and mailed to individuals as an awareness tool.

Facebook
Twitter
WhatsApp
Email

Latest News

Facets of ME: Temperature Dysregulation

Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.

Read More »

Dept. of Labor Updates Information on ME/CFS for Workers, Employers

The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting

Read More »

#MillionsMissing: 7 Days in Self Portraits with ME/CFS

After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below. Click on any of the

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top