Spoonie Survival Kits

Spoonie Survival Kits is a fundraising project that involves making little bags of happiness for chronic illness sufferers. The bags contain items for sufferers to make in bed, things for them to eat and to wear, and symbolic items to remind the recipient that they are not alone in their fight.

Our goal is to share the love and make sure all sufferers feel supported; everybody involved in the project lives with a chronic illness, and so we feel we have a good idea of what would make somebody in a similar position feel good.
The kits are funded by our own money and kind donations from the public. Once the kits are made up, they are sold online. We are a non-profit organisation: 25% of funds go into making new products for sale, and 75% goes to Action For M.E, a charity that promotes awareness of and research for Myalgic Encephalomyelitis.

The project initially started as a small fundraising activity for myself, but the support and positive response I received from the community allowed it to grow into something bigger. I now have two lovely volunteers and we now sell other items such as bracelets, worry beads and inspirational quote cards. We also have a professional website on the way.
We would also like to engage and offer opportunities to the chronic illness community, and so we invite anybody who crafts/ owns a small business to become involved in the project. If you would like to find out more about this, please email me at [email protected] and we can have a chat 🙂
Overall, we have had a great response to our project and would love to continue to share the love and raise some money for a great cause!

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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