Spoonie Survival Kits is a fundraising project that involves making little bags of happiness for chronic illness sufferers. The bags contain items for sufferers to make in bed, things for them to eat and to wear, and symbolic items to remind the recipient that they are not alone in their fight.
Our goal is to share the love and make sure all sufferers feel supported; everybody involved in the project lives with a chronic illness, and so we feel we have a good idea of what would make somebody in a similar position feel good.
The kits are funded by our own money and kind donations from the public. Once the kits are made up, they are sold online. We are a non-profit organisation: 25% of funds go into making new products for sale, and 75% goes to Action For M.E, a charity that promotes awareness of and research for Myalgic Encephalomyelitis.
The project initially started as a small fundraising activity for myself, but the support and positive response I received from the community allowed it to grow into something bigger. I now have two lovely volunteers and we now sell other items such as bracelets, worry beads and inspirational quote cards. We also have a professional website on the way.
We would also like to engage and offer opportunities to the chronic illness community, and so we invite anybody who crafts/ owns a small business to become involved in the project. If you would like to find out more about this, please email me at [email protected] and we can have a chat 🙂
Overall, we have had a great response to our project and would love to continue to share the love and raise some money for a great cause!
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the