Spoonie Survival Kits

Share on facebook
Share on twitter
Share on email

Spoonie Survival Kits is a fundraising project that involves making little bags of happiness for chronic illness sufferers. The bags contain items for sufferers to make in bed, things for them to eat and to wear, and symbolic items to remind the recipient that they are not alone in their fight.

Our goal is to share the love and make sure all sufferers feel supported; everybody involved in the project lives with a chronic illness, and so we feel we have a good idea of what would make somebody in a similar position feel good.
The kits are funded by our own money and kind donations from the public. Once the kits are made up, they are sold online. We are a non-profit organisation: 25% of funds go into making new products for sale, and 75% goes to Action For M.E, a charity that promotes awareness of and research for Myalgic Encephalomyelitis.

The project initially started as a small fundraising activity for myself, but the support and positive response I received from the community allowed it to grow into something bigger. I now have two lovely volunteers and we now sell other items such as bracelets, worry beads and inspirational quote cards. We also have a professional website on the way.
We would also like to engage and offer opportunities to the chronic illness community, and so we invite anybody who crafts/ owns a small business to become involved in the project. If you would like to find out more about this, please email me at [email protected] and we can have a chat 🙂
Overall, we have had a great response to our project and would love to continue to share the love and raise some money for a great cause!

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top