BBC journalist's blog on ME

Share on facebook
Share on twitter
Share on email

I would like to share an incredible blog post written by John Darvall, the BBC radio journalist who interviewed me and my family recently. He writes:
“When I knocked on the door to interview Naomi I knew little about M E. other than its dodgy reputation and the questions about whether it was actually a real illness. When I left Naomi’s parents home where she lives, having spoken to her, her mother and brother for an hour I cried.”
He ends by saying:
“I will now do more to help others with this condition. M E is dreadful, debilitating illness that when it takes hold it never lets go. For Naomi, for all those living with chronic pain and M E, I will do more while I can.”
It’s wonderful to know that there are journalists out there who are prepared to listen to what we say, and then speak out on our behalf. There is real hope that attitudes can and will be changed.

For more about the interview:
Update: Marathon for ME BBC Interview with Tom and Naomi Whittingham

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

1 thought on “BBC journalist's blog on ME”

  1. My daughter Kara has severe M.E. We as a family are greatful for any publicity about this serious condition. Kara was 16 when our lives were turned upside down. It’s been a battle ever since. To be treated with disbelief from medical professionals until recently has been the hardest to take. Not until Kara nearly died from sepsis were we ever taken seriously. Lucky for us Kara pulled through but remains severe. It was neglect and we could have taken it further but Kara didn’t want to. Her only remaining fight is to remain alive for a long as possible and doesn’t have the energy for anything else. As her mother I feel I’ve been robbed and still has yet to come to terms with terrible illness that has taken a bright young ladies future away from her.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top