According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS).
Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease.
The NIH funds ME/CFS at $5 million per year, and that amount is estimated by the NIH to stay about the same through 2016. The NIH spends almost 10 times more on attention deficit disorder, 15 times more on infertility, and 80 times more on depression.
The IOM report confirms this dismal state of affairs, stating that remarkably little research funding has been made available, especially given the number of people afflicted.
Please help get more funding for this devastating and badly neglected illness. Please sign only if you are a resident of the United States. Thanks!
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Sign petition To Fix ME/CFS tracking In US!
September 13, 2021
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In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the
