Medicine Archives

Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

January 4, 2019 No Comments

Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders in health care to empower collaborative change. This year’s Medicine X | Change conference will be held at Stanford University in Palo Alto, California on Sept. 20 – 22, 2019. Stanford describes the conference as, “less

Sept & Oct — Research Roundup

November 15, 2018 1 Comment

The end of September was a whirlwind! Between the CDC’s website work, the CDC’s awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn’t much time to devote to breaking down the science. If you’d like to see a quick run-down of what’s been going on lately

It has been an Intense Week!

October 22, 2018 No Comments

It Has Been A HUGE Week in the U.S.! This last week has been a bit of a whirlwind – we’ve never been busier! It’s been a week of advancing the cause of health equality for people with myalgic encephalomyelitis through the launch of the Unrest continuing medical education program and the expansion of our US advocacy team. It’s also

Join the fight against stigma and pseudoscience in New York

October 19, 2018 2 Comments

This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center — and they invited Per Fink to speak. If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young woman with ME. [pullquote

UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

October 18, 2018 1 Comment

A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th October, it seems appropriate to reflect on the impact of the conference on educating GPs about myalgic encephalomyelitis (ME). The RCGP Conference is the must-attend event of the year for GPs and practice team colleagues, showcasing

Open Letter Demands Removal of Netflix's "Afflicted" – Sign the Petition

September 18, 2018 2 Comments

On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. “We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions,” states the letter. “Its inclusion

Stop CDC from Hiring Shoddy Contractor for ME Treatment Guidelines!

August 26, 2018 No Comments

PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC’s attention. Yet the solicitation is still only open through Thursday, September 13 meaning interested applicants

Will the FDA Stand in the Way of Your ME Treatment? Take Action now!

August 7, 2018 4 Comments

Suppose there was a substance that could help you, but before you learned about it, or you could find a doctor to prescribe it, the FDA banned it from the market, even though patients have successfully used it for decades. Or suppose there was a treatment that had helped your function improve from 40 percent

CDC Revises Its Information on ME

July 29, 2018 118 Comments

Update: #MEAction has incorporated your comments in its draft to the CDC! See what we’ve added from the comments below by clicking on the updated version of the article by clicking here: CDC website article text. Community-based changes to our recommendations are in red ink. In September 2016, I attended a meeting at the Centers for

NICE Guideline for ME: #MEAction UK Responds to Second Draft Scope

July 27, 2018 3 Comments

The National Institute for Health and Care Excellence (NICE) is in the process of updating its guideline for Myalgic Encephalomyelitis by October 2020. #MEAction UK has issued a response to the second draft scope for the ME/CFS Guideline. The scope is a document which will provide the framework for the new guidelines; providing feedback about

Category: Medicine