Category: Media

Speeches from the front lines of #MillionsMissing: Carol Head

I’m Carol Head, President of the Solve ME/CFS Initiative, here with Linda Tannenbaum.  Our organization conducts innovative research to solve ME/CFS. We conduct research and have created a biobank of ME/CFS patient information for use by all researchers. Before I begin, a quick note of thanks to Mark Cormizand. As you may know, we are

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#MillionsMissing in the News

The #MillionsMissing protest gained worldwide attention in the form of national and local press, including an excellent piece by Rivka Solomon that was first picked up by STAT, a national publication, and then by Business Insider and The Week.  London’s protest was covered by The Evening Standard; and several local radio programs, including BBC Bristol,

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Speeches from the Front Lines of #MillionsMissing: Ron Davis

I’m Ron Davis and my son is missing… Linda Tannenbaum has really helped us a lot in raising funding. We have enough funding that we managed to assemble a very small team at the Stanford Genome Technology Center. This team is really excellent in doing research.  And we are making progress. Now, it is very

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Six ways you can take action today!

1) PUT YOUR SHOES OUT Put your shoes out on your front step, at the end of your driveway, or in a public place to symbolize a patient, a friend or a loved one missing because of ME; consider placing them with a sign to tell the story of just what that person – and

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Act now! Our #MillionsMissing Round-Up

Hello, everyone! It’s only three days until the #MillionsMissing protest, so it’s time to review what’s gone on so far, and discuss what you can do to help ensure we are heard by our governments! Locations: So, your protest has gone out into the world and is now in a dozen different locations. Locations now

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AIDS activist with ME speaks at CFSAC

An AIDS activist and member of ACT UP/NY who has been newly diagnosed with ME has criticized US government health bodies for repeating AIDS history by “doing nothing” for millions of ME patients. Terri Wilder, from New York, provided testimony at the CFS Advisory Committee (CFSAC) meeting on 18 May. Terri stated that her testimony

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Share #DontIgnoreME films to raise awareness

This M.E. Awareness Month, our is simple: don’t ignore M.E. To spread this message, Action for M.E. launched three films as part of M.E. Awareness Week. Starring Sharon and Douglas, who have M.E., Sharon’s partner Connor, and our medical advisers Dr Gregor Purdie and Prof Julia Newton, each focuses on a different aspect of M.E. and its impact.

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Online TV show to discuss ME/CFS Centers of Excellence

Dr Kenneth J. Friedman will discuss the CFS Advisory Committee’s (CFSAC’s) upcoming proposal for ME/CFS Centers of Excellence and will explain what patients can do to make such centers a reality, in an online TV panel show on May 12. The one-hour show, which covers ME/CFS and Lyme Disease, will be broadcast on Channel 17

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Download the #MillionsMissing Twibbon

Announcing the #MillionsMissing Twibbon — now it’s easier than ever to add the #MillionsMissing filter to your photo on Facebook and Twitter!  All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest a place to create an email about the

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