Category: Media

Attend the MEpedia online meet-up this Thursday!

What can you do for ME activism today? Many patients, caregivers, physicians and educators would like to contribute to ME activism in a meaningful way, but patients have limited resources and energy. ME patients aren’t working alone, however: if even a small percentage of the ME population were to work together, we would still be

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Jennifer Brea gives rallying TED Talk

On June 27, Jennifer Brea, #MEAction co-founder, filmmaker, TED Fellow, readied herself to speak in Banff, Canada at TEDSummit 2016.  The process of preparing can be described as grueling for anyone, much less for someone with ME: Brea had spent weeks writing and fact-checking the talk with a committee from TED, and now had to keep her focus

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Listen to Jarred Younger's CDC conference call this Thursday

The latest of the US Centers for Disease Control’s (CDC’s) Patient-Centered Outreach and Communication Activity (PCOCA) telephone conference calls for ME/CFS will take place on Thursday, June 23, and will feature Dr. Jarred Younger. His talk, which will begin at 3:15 pm EDT (Eastern Daylight Time), is titled, “Current and Future Research on ME/CFS Treatments

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Join the #MillionsMissing this Sept — Bigger. Louder. Stronger.

On May 25, 2016, we did something extraordinary together: we held the largest, loudest protest ever held for ME/CFS. We came out in force: in Boston, Dallas, San Francisco, Seattle, Washington D.C., Raleigh, and Atlanta; in London; in Melbourne; in a Canada-wide virtual protest; in Bergen, Norway; and in Belfast, Northern Ireland.  Impromptu shoe displays

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New ME/CFS Book: Lighting Up a Hidden World

This month, Valerie Free’s new book, Lighting Up a Hidden World: CFS and ME will be released to the public. In 1990, Valerie Free was a vibrant, thirty-year-old woman: a court stenographer, wife, and mother. In July of that year, she came down with a sudden, flu-like illness and after months of unrelenting and bizarre

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Jen Brea to give TED talk on June 27!

Documentary maker and #MEAction founder Jen Brea will give a talk at the prestigious, five-day TED summit in Banff, Canada, on Monday, June 27. Her presentation will be one of seven talks by TED fellows in a session starting at 11:15 a.m. MDT (Mountain Daylight Time) and will focus on her experience with ME. The

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80th “Science to Patients” ME/CFS interview on YouTube

The Dutch ME/CFS Association (ME/CVS Vereniging) has posted the 80th in its video interview series, “Science to Patients” (“Wetenschap voor Patienten”), this time featuring British academic neuropsychiatrist Dr. Neil Harrison. Dr. Harrison, of Sussex University, discusses the possible role of inflammation in the brains of ME/CFS patients in seven mini-interviews in the series. In the

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Speeches from the Front Lines of #MillionsMissing: Sonya

Sonya Myalgic Encephalomyelitis (ME) Patient 5/25/16 Washington, DC #MillionsMissing Protest Speech Transcript In April of 2011, I was thriving and loving life. At the peak of my career, working my dream job in the U.S. Foreign Service, only 39 years old but already the equivalent of a Colonel in the military, I was successful, healthy,

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