Category: Media

Share #DontIgnoreME films to raise awareness

This M.E. Awareness Month, our is simple: don’t ignore M.E. To spread this message, Action for M.E. launched three films as part of M.E. Awareness Week. Starring Sharon and Douglas, who have M.E., Sharon’s partner Connor, and our medical advisers Dr Gregor Purdie and Prof Julia Newton, each focuses on a different aspect of M.E. and its impact.

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Online TV show to discuss ME/CFS Centers of Excellence

Dr Kenneth J. Friedman will discuss the CFS Advisory Committee’s (CFSAC’s) upcoming proposal for ME/CFS Centers of Excellence and will explain what patients can do to make such centers a reality, in an online TV panel show on May 12. The one-hour show, which covers ME/CFS and Lyme Disease, will be broadcast on Channel 17

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Download the #MillionsMissing Twibbon

Announcing the #MillionsMissing Twibbon — now it’s easier than ever to add the #MillionsMissing filter to your photo on Facebook and Twitter!  All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest a place to create an email about the

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Latest in Solve webinar series

The latest webinars in Solve ME/CFS Initiative’s 2016 series will soon take place, with Dr Jarred Younger speaking on 19 May and Dr Jose Montoya on 16 June. Dr Younger is Associate Professor in the Departments of Psychology, Anesthesiology and Rheumatology at the University of Alabama at Birmingham, and Director of the Neuroinflammation, Pain and

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Dr Jarred Younger continues YouTube webinars

Dr Jarred Younger has completed another in his ongoing series of live webinars and recorded videos on his research into ME/CFS, fibromyalgia and Gulf War Syndrome (GWS) at the University of Alabama. Dr Younger is Director of the Neuroinflammation, Pain and Fatigue Laboratory at the university. The latest webinar was Part II of a Q&A

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Join this day of protest: May 25th

#MEAction is excited to announce its first protest in Washington DC! (Now rescheduled for May 25, 2016) Please join us May 25th for a protest outside of the Health and Human Services building in Washington DC. Our goal is to raise the visibility of this illness and the people living with it. Can’t make it to

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Caravana La Paz: The continued fight for equality in Bolivia

On March 21st, the brave Bolivian AKIPerDis protestors began their 265 mile journey by wheelchair through the Andes mountains to capital La Paz to demand equality and livable disability pensions. The group has already come face-to-face with adversity in many of its forms in the roughly 100 miles that they’ve traveled since the 21st of March. Amidst death

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Help Canary crowdsource archival research

Canary in a Coal Mine (working title), my documentary film about myalgic encephalomyelitis, is heading toward rough cut, an early version of the finished film. Right now, we are working intensely on the historical sections to help the audience understand not only the history of the disease but a broader history of medicine. The intention is to give

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Why is MEpedia so crucial?

MEpedia is a crucial tool for advocates, researchers, doctors, policy makers, and even the general public, that will allow them to find all current information on myalgic encephalomyelitis in one place.

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James Coyne Stormont talk on YouTube: PACE "outrageously bad"

Professor James Coyne’s February 9 Belfast talk, “The Scandal of the £5m PACE Trial”, is now available on YouTube. The talk, given at Stormont, the home of the Northern Ireland Assembly, was delivered to a 40-strong audience of Members of the Legislative Assembly (MLAs), doctors, researchers and key health decision-makers. Professor Coyne spoke about  how

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