Introducing the #MillionsMissing Profile Filter App! This app was designed to help raise awareness for the millions of people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). It lets you add a special theme to any picture you choose so that you can upload it to your social media profiles to show your
Physician and patient, Sharon Meglathery MD, describes how she developed the RCCX Theory as a result of clinical observation, being a patient herself and having another patient mention the RCCX. She explains that the full theory is on her website www.rccxandillness.com. She then talks about meeting Karen Herbst MD PhD Endocrinologist through the website and setting up an IRB to study the RCCX Theory. Finally , she describes developing a non-profit to fund research into the RCCX module’s possible connection with familial chronic illness clusters (EDS-HT, CFS, FM, Lyme, MCAS, POTS, Psychiatric Spectrum, Pain, Autoimmune/Immunological, Endocrine, Adipose, Neurological Disorders, etc.). Donations can be made at www.rccxproject.org.
But that doesn’t answer the question: what’s with the cape and tighty-whiteys?
#MillionsMissing now has an address where you can send your shoes! We are asking patients who are unable to make it to the physical protest locations to please donate one pair of shoes to the address below and we will display them in their honor at the Washington, DC protest. You can send a pair of
On Saturday, 7 May 2016, Mike Sutton will begin a 240-km (150-mi) journey along the Camino del Norte to raise awareness and generate more funding for ME/CFS. Mike is dedicating each day of the ten-day walk to an ME/CFS sufferer, using the hike as a platform to tell their story, share a picture of them during
May 12th Awareness Day is a great day to share a blog post. If you are writing a post, please consider using the tag #May12BlogBomb when you share your post on social media, and, also submitting the blog link for inclusion on the 2016 #May12BlogBomb Link List that will be collated on Sally Burch’s blog Just ME
The #MillionsMissing protest is full-steam-ahead: we’re mobilizing in Washington D.C., Seattle, San Fransisco, and Dallas; we’re revving up our engines in other cities all across the United States, our friends in other countries have pitched in, and the enthusiasm has reached an all-time high. However, if you’re sitting at your computer holding five spoons for
The Blue Ribbon Foundation will have this offer available until May 19th, and will send out all orders on May 20th to reach the state representatives’ desks on or by May 25th, in a virtual protest. If you are not able to physically attend either of the protest sites, this is an excellent opportunity to make your voice heard.
A link to my GoFundMe, so that I can afford to find a specialist
How many of us are out there with ME/CFS? Put yourself on the map so that we can show the world how many of us exist! Put yourself on the map using this website: diseasemaps.org. Simply search for Chronic Fatigue Syndrome/M.E., and then add your information. (Include name or not.) We can prove to our
