Category: Events

Image of Beth smiling at the camera is at the center of the image. The words Beth Mazur and Memorial Service underneath. There are green and blue foilage in the corners, plus the #MEAction Logo in the top right corner.

Beth Mazur — Memorial Service and Obituary

As many of you know, we lost a wonderful person recently. Beth Mazur passed away after battling ME for 15 years. She was the cofounder of #MEAction and a selfless beacon of hope and light for so many in our community. She demonstrated an unwavering commitment to the cause. We could not be more devastated. 

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red/orange rectangle image with the words: Apply for 2023 appear in a gray round bubble that lays atop a white box that says NIH Conference Travel Scholarship. Under the box, the words new travel scholarship for providers and medical students to the (NIH) Conference: Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, December 12- 13, 2023 Bethesda, MD appear. The #MEAction logo is on the left hand side of the image

Announcing: New NIH Conference Travel Scholarship for Providers and Medical Students!

#MEAction is thrilled to announce a new travel scholarship for providers and medical students to the National Institutes of Health’s (NIH) Conference, Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, this coming December 12- 13, 2023 in Bethesda, MD. #MEAction is providing this opportunity for one to two promising medical students

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Rectangle image with a burnt reddish background that features a black typewriter with lined paper swirling up out of it. The words: “#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops, Weekends in November” appear in black font. The #MEAction logo is in the upper left hand corner and the Writers Guild Initiative logo is in the upper right hand corner.

#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops

#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during the

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a collection of millionsmisisng pictures featuring people protesting over the years in red shirts and with protest signs. white dashses connect the photos. the words words "the Story of the #MillionsMissing" is in white font in the top lefthand corner with the #MEAction logo there. The words "Coming Soon" is handwriting font is in the top righthand corner.

“#MillionsMissing is our drumbeat”–Preview Party 9/24

RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world

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On a red background the words, ​​"Bed activism" at the Washington Monument & A Politics of Care by Ben HsuBorger in white. The #MEAction logo in the bottom righthand corner.

​​”Bed activism” at the Washington Monument & A Politics of Care

I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the Washington Monument this past May 12th was a different—even surreal—experience.  The installation of cots was so large that I could see people coming across the mall to see what it was. I would tell them that

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Gold fireworks lighting up over a black background. The words, TOP HITS 2022 is in the center in white lettering. the words: #MEAction accomplished a lot last year is undernether with the #MEAction logo

Let’s Look at #MEAction’s Top Hits from 2022

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

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Red box at the top says Join us at #MillionsMissing Scotland! Then there is a picture of people gathered at a protest holding signs and wearing read shirts, some are in wheelchairs. Low bottom of the image has a red box that says New Date: Wednesday, 28th September 12:30-2:30pm

New date for #MillionsMissing Scotland

Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September. #MillionsMissing Scotland will now take place on Wednesday 28th September, from 12.30-2.30pm. We appreciate this isn’t a lot of notice but we are keen to build on the momentum the event has already gained and to hold it while it

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NIH Comes up Short Once Again

No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has announced their intent to extend the ME/CFS Collaborative Research Center (CRC) program, first launched in 2017, beyond its initial 5-year lifetime. They have issued a $7.1M annual funding opportunity for the ME/CFS CRCs, and another $500K

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