Help Me Find Treatment for M.E.
April 25, 2016
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A link to my GoFundMe, so that I can afford to find a specialist
Author: #MEAction
British doctor known for defending children prohibited from treating ME patients
April 23, 2016
19 Comments
On 20 April, the UK’s General Medical Council (GMC) imposed limits on the medical license of Dr Nigel Speight, well known for his work in protecting children with ME/CFS against inappropriate psychological intervention and removal from their families. The limits come after a complaint from Esther Crawley, medical advisor to the Association of Young People with ME.
Support the #MillionsMissing Seattle Protest on May 25
April 23, 2016
2 Comments
#MEAction Washington is asking all of Seattle to come out and support our #MissingMillions protest scheduled for May 25 in front of the Henry M. Jackson Federal building at 915 2nd Avenue in downtown Seattle.
Light up the Night on May 12, 2016!
April 20, 2016
8 Comments
a may 12 project. The challenge is to get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th – blue, purple or green. We want public buildings/places like City Halls, Niagara Falls and we want individual homes lit up too!
Enter the #MillionsMissing Poetry Contest 2016
April 19, 2016
19 Comments
#MEAction is seeking poems to honor those around the world struggling with M.E. This call to poets is designed to complement other awareness projects taking place during May. Our goal is to proudly display the creative resources of our community and to celebrate the courage it takes to speak out about the injustices and suffering we face on a daily basis.
Join the #MillionsMissing San Francisco Demonstration on May 25
April 18, 2016
4 Comments
Please join us in San Francisco, or send us your photo. Help us all to be seen and heard!
Keep PACE out of WebMD and HealthDay
April 15, 2016
6 Comments
Web MD, the largest online publisher of news and information regarding health and well-being, has released its “latest news” about ME/CFS in an article based on the discredited PACE trials. It asserts that “British researchers concluded that a form of talk therapy, called cognitive behavior therapy, and graded exercise therapy are among the best treatments for chronic fatigue.”
Communications with NIH
April 13, 2016
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We wanted to be clear about our communications with NIH since there has been some conflicting information. The founders of #MEAction have never met with Dr Collins, Dr Koroshetz, Dr Nath, or anyone else on the intramural study. We have requested several times to meet with Dr Koroshetz and Dr Nath so that we could share the
#MEAction USA leaves the USAWG
April 10, 2016
4 Comments
We wanted to take this opportunity to announce to the community that #MEAction USA has decided to formally leave the US Action Working Group (USAWG). We will definitely continue to collaborate with many of its members and welcome them, and all organizations and individuals in the community, to use this platform to share their work and
NIH Calls For Additional Research Proposals to Study ME/CFS
April 7, 2016
4 Comments
In essence, the NIH is posting an open call for research scientists with proposals that may fall under the purview of the original grant for the NIH’s intramural ME/CFS study.