1:00pm EDT (New York) | 5:00pm GMT (London) UPDATE:The event is very full, so not everyone will be able to be on Bluejeans (info pasted below). We are planning to both a) record the event and b) livestream on Facebook. So if you do not get into the bluejeans call, do not worry. You can either …
Please join us for the monthly California #MEAction support and informational meeting every last Thursday of the month at 6:30 pm (PDT). The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially …
The Trans-NIH ME/CFS Working Group will hold a telebriefing about updates on NIH’s efforts to advance research on ME/CFS on November 5, 2020, 11:00 am until 12:00 pm ET. Read more about #MEAction's letter to NIH on accelerating ME/CFS research here. The guest speaker will be Allison Kanas, Administrative Director & Director, Community Outreach & Engagement at the Center for Solutions for …
Your input is vital as #MEAction UK responds to the consultation on the draft ME/CFS guideline. We want you to steer our response and explain what changes you think need to be made to this guideline before the final version is published in April 2021.
The second of two calls facilitating community discussion of the draft ME/CFS guideline, and inputting to #MEAction UK's response to the consultation.
Based on your responses to our polls on social media, we’ll be screening a double feature of Spiderman: Into the Spiderverse & Fargo on the eve of Thanksgiving, Wednesday, November 25th. Into the Spiderverse will begin at 1 PT / 4 ET and Fargo will begin at 3:30 PT / 6:30 ET. *Notes about both …
Friendsgiving Community Movie Party – Into the Spiderverse & Fargo! Read More »
A People with ME writing group is beginning! Come, Try it out!! #MEAction is excited to partner with longtime ME advocate and mother of a pwME, Bobbi Ausubel, to host a brand new writing group for people with ME, Writing From Our ME Lives. This group is for people with ME who are interested in …
Join us on Sunday December 20th for a Holiday Party! This is open to everyone in the community, and we hope you'll hop on for a low-key and cozy hang! Put on your PJs and get ready for a round of games, story-telling, and merry-making of all sorts. Follow the link below to join via …
Join us for our Postcards to Doctors -- Kickoff Party 2021, where we will get together via videochat and have fun. Bring your postcards, your best pens, and your best hopes for the new year! Learn more about the Postcard to Doctors Program here! Join event here: https://bluejeans.com/617467724More information to come soon!
Join us for a twitter conversation with Jamison Hill, author of the new memoir When Force Meets Fate: A Mission to Solve an Invisible Illness.Follow @MEActNet and Jamison Hill and search the #WhenForceMeetsFate hashtag on Twitter to join us as we get the chance to speak to Jamison about his new work!Jamison Hill is a writer with ME and has written …
The ME Partner Caregivers Support Group invites caregivers who are spouses, partners, or significant others of people with ME to join us to connect, share, and support each other. We strive to provide an affirming, safe place to share for all people regardless of sexual orientation and gender identity. We meet every second Sunday of …
Join #MEAction Maryland on the 3rd Tuesday of each month at 1 pm EST for our monthly support call! This monthly call will focus on creating support and community for pw/ME. This will be a space to connect with fellow pw/ME, exchange helpful resources, and feel heard and understood in a safe and supportive environment. …
