Enrolling: 23andMe Genetic Testing Study

The Institute of NeuroImmune Medicine is collecting genetic data from 23andme or ancestry.com for 10,000 patients. Their aim is to generate computer learning programs will search for biomarkers that can be used to develop drug targets and diagnostic tests.


Who:
Dr. Klimas and Dr. Bested at NSU (Institute of Neuro Immune Medicine)

When:

Ongoing


What:

Click here to learn more.

When:

Ongoing


Where:

Samples will be delivered to researchers at the NSU


How to Participate:

Email [email protected] stating you wish to participate.  In return, you will receive an encrypted email with instructions.  You will be given a questionnaire and a way to upload the file that contains your genetic data.  This will be stored in RedCAP, a secure database used for science and medicine.

Facebook
Twitter
WhatsApp
Email

10 thoughts on “Enrolling: 23andMe Genetic Testing Study”

  1. Rebecca Susan Culbertson

    I would love to join this study, but I am unable to open your attachment. I have followed all of your instructions for opening, but it fails every try. I am an apple user with safari. I did however join the Microsoft platform but again, no luck. Any tips would be appreciated. Thanks!

    1. I tried to upload my information but was unable to finish the questionnaire. I tried to get back on, but was unable to do so. I have sent a couple of emails, but didn’t hear back from anyone.

  2. Rebecca Susan Culbertson

    I would love to join this study, but I am unable to open your attachment. I have followed all of your instructions for opening, but it fails every try. I am an apple user with safari. I did however join the Microsoft platform but again, no luck. Any tips would be appreciated. Thanks!

    1. I tried to upload my information but was unable to finish the questionnaire. I tried to get back on, but was unable to do so. I have sent a couple of emails, but didn’t hear back from anyone.

  3. I tried to enroll but the encrypted message never worked and I received no follow up which is disappointing.

  4. I tried to enroll but the encrypted message never worked and I received no follow up which is disappointing.

  5. The survey is broken. I was diagnosed by Mayo Clinic and Dr Vernino as having CFS. The survey said I did not qualify.

  6. The survey is broken. I was diagnosed by Mayo Clinic and Dr Vernino as having CFS. The survey said I did not qualify.

Comments are closed.

Latest News

#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024

We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME.  We intimately know the

Read More »
white rectangle with the words: Interview with Author Lauren Saikkonen in black font. There is an image of her book cover, Invisible Illness on the left hand side. And a photo of Lauren on the right hand side. Lauren is wearing a red sweater and is smiling at the camera.

Interview With Lauren Saikkonen – Author of Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive

#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive, with you by author Lauren Saikkonen! This book is an autobiography that covers Lauren’s entire life, but heavily focuses on her battle with Ehlers-Danlos syndrome, ME, and fibromyalgia.  You can purchase this

Read More »
Scroll to Top